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Recent activityNewest posts

@chriscoxrox 

30 Jun 2020 22:23Last reply 2 Jul 2020 20:16

chriscoxrox

Something new

Two musicians with MS One in Texas and the other in New York have made something amazing over the last year and a half and never even met in person. This conceptual album is about to change the game. Not only the music but most of the animation and artwork were done by the two musicians with #multip...
3

@wheelrunconflux 

13 Jun 2019 18:42Last reply 13 Jun 2019 20:21

wheelrunconflux

Potentially useful?

I've been stuck in limbo for a long time now, but during that time have become not only accustomed to my physical differences. But, I think the experience of them has complimented my continual progress as a person. I see a lot that people feel down regarding their MS and although my solution is in...
  • Diagnosis
  • Limbo land
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Fatigue
  • Pain
  • Work and play
  • Accessibility
1

@wheelrunconflux 

31 May 2019 06:26Last reply 13 Jun 2019 14:19

wheelrunconflux

Thoughtline

It has been 5 years since the beginning of all this when I sat down with a neurologist and said 'Well yes, I've had some numbness in my legs' at the end of an appointment. During the 5 years I've had: 1 diagnosis of CIS, numerous MRIs, 1 LP, 1 nerve conduction study, 1 stint of neuro rehab, a lot o...
  • Diagnosis
  • Limbo land
  • Research
  • Symptoms
  • Dizziness
  • Fatigue
  • Pain
  • Work and play
  • Accessibility
  • Work and Study
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  • Cause
7

@shiftms-films 

28 Sep 2023 09:31

shiftms-films

📽️ Watch episode 2 now!

Making the right decision for me: Understanding your options “It was through looking at other people that I realised there was a more holistic approach”. Preach it Roxy! 🙌 In this episode, check out Roxy, Dom and Claire talking about how to root out good MS resources, contextualise information an...
  • Treatment
  • Which DMT
  • Disclosure
  • Diagnosis
  • Work and play
  • Work and Study
  • Symptoms
  • Relapses

@DominicS 

10 Jun 2019 09:29Last reply 10 Jun 2019 14:00

DominicS

Concerns over DMT's

I am actually interested (from my academic background) in risks and how we perceive them. Reading a data sheet about a drug - risks and side-effects especially - is bloody terrifying. The thing is is that the risks are rarely properly explained or contextualised. An article I wrote cited a recent...
  • Which DMT
  • Treatment
  • Work and play
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6

@hmcampos 

16 May 2018 10:26Last reply 17 May 2018 05:58

hmcampos

Brain / Spinal Cord MRIs

Hello all, Hope MS is not interfering too much with you day. I have had my DX about 3 years ago, multiple MRis, 2 DMTs and ever since no brain lesions. Neuro keeps telling me everything is OK and yet I do not feel all that way. Let me contextualize: 1) Never fully understood (accepted) why we ...
  • Diagnosis
  • Secondary progressive
  • Research
  • Treatment
  • Tecfidera
  • MRI
4
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