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Hello. Quick questions. Long Post. Sorry. This is my first time posting here. Q1: Can anyone tell me what’s up with PIRA (or Smoldering MS as it’s referred to in some literature). Q2: Has anyone with long term RR MS (I was diagnosed 35 years ago) experienced progression as they age (I’m 62 in a co...

Two musicians with MS One in Texas and the other in New York have made something amazing over the last year and a half and never even met in person. This conceptual album is about to change the game. Not only the music but most of the animation and artwork were done by the two musicians with #multip...

I've been stuck in limbo for a long time now, but during that time have become not only accustomed to my physical differences. But, I think the experience of them has complimented my continual progress as a person. I see a lot that people feel down regarding their MS and although my solution is in...

It has been 5 years since the beginning of all this when I sat down with a neurologist and said 'Well yes, I've had some numbness in my legs' at the end of an appointment. During the 5 years I've had: 1 diagnosis of CIS, numerous MRIs, 1 LP, 1 nerve conduction study, 1 stint of neuro rehab, a lot o...

Making the right decision for me: Understanding your options “It was through looking at other people that I realised there was a more holistic approach”. Preach it Roxy! 🙌 In this episode, check out Roxy, Dom and Claire talking about how to root out good MS resources, contextualise information an...

I am actually interested (from my academic background) in risks and how we perceive them. Reading a data sheet about a drug - risks and side-effects especially - is bloody terrifying. The thing is is that the risks are rarely properly explained or contextualised. An article I wrote cited a recent...

Hello all, Hope MS is not interfering too much with you day. I have had my DX about 3 years ago, multiple MRis, 2 DMTs and ever since no brain lesions. Neuro keeps telling me everything is OK and yet I do not feel all that way. Let me contextualize: 1) Never fully understood (accepted) why we ...