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Octave MSDA Test (Multiple Sclerosis Disease Activity Test)

Hi everyone! So my last neurology visit, my Dr. tells me he is concerned that there may be a misdiagnosis, and or just want to be sure I am on the right track of my treatment plan so he ordered me to get this (Multiple Sclerosis Disease Activity Test) which I go in and get bloodwork done. I was hol...

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Getting on a weight loss Drug. I am overweight not by much but enough to make me feel bad about myself and I know that losing weight would make me feel so much better with this multiple sclerosis. How do I get on weight loss drugs that I can afford?

Darien, United States

First posted on the Shift.ms app

Getting on a weight loss Drug. I am overweight not by much but enough to make me feel bad about myself and I know that losing weight would make me feel so much better with this multiple sclerosis. How do I get on weight loss drugs that I can afford?

Darien, United States

First posted on the Shift.ms app

Getting on a weight loss Drug. I am overweight not by much but enough to make me feel bad about myself and I know that losing weight would make me feel so much better with this multiple sclerosis. How do I get on weight loss drugs that I can afford?

Darien, United States

First posted on the Shift.ms app

Unpublished

@Cynthialee7165

Blood test is the best way to find out if you have multiple sclerosis

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I had a very busy day. 2 Dr appointments and got blood drawn and pharmacy. Please pray I get clearance for surgery on my left knee surgery. Please pray. Oh now my PPMS is effecting my bladder. Just another problem because of my multiple sclerosis. Hate this disease. Lots of phone calls to make tomorrow.

Jurupa Valley, United States

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Hi there everyone just thought I would check in my multiple sclerosis makes me prone to falling.my last fall which was Tuesday has left me in hospital with hairline fracture of my left hip which means I’m bedridden I’m beginning to get depressed and overwhelmed with everything

Wirral, United Kingdom

First posted on the Shift.ms app

Unpublished

My journey with Multiple Sclerosis

My journey with Multiple Sclerosis began with a persistent tingling sensation in my spine. Over time, the symptoms became more severe, and I eventually lost the ability to use my right arm, making everyday tasks extremely difficult.After searching for another option, I decided to try the herbal trea...

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Have anybody heard of the HSCT? or the US Stem Cell Therapy for Multiple Sclerosis?

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app