Shift.ms

9 Jun 2016 02:15Last reply 9 Jun 2016 18:08

Feeling Optimistic

Hi everyone, I am finally getting the answers to my questions by my medical team. I changed neurologists months ago, I was never getting any answers from her. My new neurologist has been awesome. He has sent me for physiotherapy, speech therapy and occupational therapy. He also took the time to a...

@TheWillow82

2 Jun 2016 18:36Last reply 5 Jun 2016 21:09

Feeling unusually optimistic!

I received a letter today from the Neurologist about my recent MRI and it seemed pretty good! There were NO new lesions and the old ones seemed to have gotten slightly smaller!! So I am pretty pleased with this and it made my usual very pessimistic self rethink! Who'dv thought?! ?

@slamminsammyms

6 May 2025 00:10 EditedLast reply 6 May 2025 19:15

No new lesions and doc predicting none in the future

Hi ms fam, I was dxd in august of last year and started Ocrevus in January. Had my first 6month mri with no new activity!!! Yay! Also my doctor said they do not anticipate any future relapses. This could be due to Ocrevus or because my there were only a few lesions when we caught it (I’m on the spec...

First posted on the Shift.ms app

@puhgena90

30 Apr 2025 20:07Last reply 1 May 2025 04:35

Newly diagnosed in Cardiff

Hi all 👋 I was diagnosed at the end of January this year, 2 weeks after my 35th birthday. Was wondering if there was anyone else in a similar position in/or near to Cardiff, Wales. I'm due to start treatment within the next few weeks and my specialist is optimistic 😊 One thing I have mentioned ...

First posted on the Shift.ms app

@beckifv

7 Mar 2024 16:31Last reply 10 Apr 2025 16:28

Bladder issue treatment

Has anyone had success with treatment for overactive bladder/urgency/incontinence? I have tried pelvic floor PT and two different medications that have not helped much. The next step is trying sacral neuromodulation (Medtronic), which I’m optimistic about but wondering if anyone here has tried this?...

@Blue42

3 Nov 2024 13:33Last reply 6 Nov 2024 05:35

It's going to be okay, right?

I like to think I'm optimistic over all but sometimes late at night the reality hits in a big wave. I hit mid-life and I went south hard. I lost my job, home, family and self respect in the melais that turned out to be MS I was told 13 years ago when I had optic neuritis that I did not have MS by h...

First posted on the Shift.ms app

@Vickyy

24 Oct 2024 15:00Last reply 25 Oct 2024 08:37

Can I ever "thrive" in the workplace? 🙃

Sorry for the vent post but I really wanted to get something off my chest. For a long time I struggled to find a stable job and was stuck working irregular hours in fast food restaurants and cafés. My financial situation was quite bad. I was estranged from family and I was looking into food banks a...

@Mummygummybear

11 Oct 2024 13:16 Edited

Mavenclad/ cladrebine

I've just got my first year MRI results back and my lesions have decreased I have/ had 2 lesions on my cervical spine. One rather large one and one smaller one. My MRI showed a decrease in the larger one and the smaller one is now invisible. I have only taken year 1 of mavenclad but am optimistic t...

First posted on the Shift.ms app

@QueenBakerman

13 Aug 2024 08:50Last reply 13 Aug 2024 21:04

Thanks for having me !

So Friday I was in so much pain and so physically exhausted I called my work and quit. Cried whilst I was doing it and my boss said ok fine. I got off the phone cried myself to sleep and then woke up at 2pm from 6am when I called. Now it’s Tuesday I’m rested, slept, still in pain but today I feel r...

Birmingham, United Kingdom

@Maymoo

31 May 2024 11:11Last reply 31 May 2024 16:06

Finally good news

A bit of a brain dump but finally something good is happening. I have had a couple of appointments with the MS nurses and I start Kesimpta in a couple of weeks. I feel like I have spent the last few months waiting around for a diagnosis and now I actually get to start taking control of my MS. Anyo...

Bristol, UK

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