It's going to be okay, right?
I like to think I'm optimistic over all but sometimes late at night the reality hits in a big wave. I hit mid-life and I went south hard. I lost my job, home, family and self respect in the melais that turned out to be MS
I was told 13 years ago when I had optic neuritis that I did not have MS by health professionals and I was so relieved to hear it. Now that I have been re diagnosed with the affliction it's hard not to get angry. I've been questioning myself all my life the main question of which was "what's wrong with me?" Well now I know.
I'm sorry that you too were in the land of misdiagnosis. It's hard and very frustrating sometimes. For myself, knowing the actual things impacting me help me move forward and to be able to plan better so unpleasant things from the past don't come back. I'm sorry you have lost your job, and even more for the people. It took some reaching out in person to groups for disabled people to find my chosen family and supportive peers. I hope you find some good people in person too.
O/N at 21. Dismissed without MRI, "it will get better". Diagnosed aged 37 (fluke, was getting mri for temporal lobe epilepsy). I'm lucky my MS is fairly inactive. But still, I understand the frustration you have and all you've lost on the way to the diagnosis. Shifters are here for ya