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Ordered my first Kesimpta pack today and it is being delivered Thursday…it should be all 5 injections and will cover me 2 months…it’s starting to feel real. I have not really acknowledged my MS diagnosis and have not told anyone barring my Mother and Sister…I did tell one of my other sisters that I...

What your go daily?

Afternoon all. Some may have seen that I decided to take the Railcard folks to task as their website for Disabled Railcards was opaque and led to many with MS thinking they weren't entitled to a Disabled Persons Railcard. Good News - anyone that can show they have MS - a letter from your GP is fin...

but what is it? (as Cat would say) I noticed US-Emma (I would tag but not sure how! sorry) in a different conversation stated that Lemtrada and one other medication are offered in the Uk for early cases and it's the best available. I am in the UK and have not been offered these, I am due to start Re...

Hi I’ve previously had 5/6 covid vaccines but then stopped . I was diagnosed with MS about 2 months ago and I’m now wondering if I should start and have my Covid vaccine again. I have another autoimmune condition that entitled me to the vaccine. I always have my flu vaccine but I’m not sure if I sho...

Please say where you are in the UK, What drugs you are prescribed and your Type of MS....so I'll get started.. PPMS - Gabapentin 2500mg daily, Fluvoxamine 100mg daily, Zopiclone 7.5mg daily, Amantadine 200mg daily, Targinact 20/10mg twice daily, Lansoprazole 30mg daily (to stop reflux from other ta...

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There's already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1  

Hi all - I was dx earlier this month, I’ve been referred to the NHS and have an appt with a nurse next Friday. What can I expect. How soon might I start some form of treatment. My eyesight has worsened and I’m not currently driving because of it which sucks and I hope treatment will help it reco...

Hi all, I need to get some more stories as part of a campaign I'm involved with to stop UK patients being diagnosed by post. Often this means a letter is sent by the hospital to the GP and the patient is copied in. There have been a few posts on here about this recently. Sometimes, patients don't re...