So, I have been offered / been enrolled on the StarMS trial. It’s a long shot but has anyone been on it, if so would they mind sharing their experience with it. I am very apprehensive, for those that don’t know it is a HSCT (Stem cell) trial involving a very intense process of chemotherapy and multi...
Had double vision for 5 weeks now. This is the second time this year. My consultant is worried about me, says my MS may be progressing. I'm waiting to see a Neuro-Optemetrist. He is discussing me at an MDT meeting. Medication may need changing to a stem cell treatment? Had my first problem with wal...
Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus?
I asked ...
Hi all, I'm new to this site but have been diagnosed with MS for a couple of years. It has been suggested that stem cell treatment could be a good thing for me to have but may mean being off work for up to 6 months.
As a contractor I won't get paid if not working so was wondering if there was any f...
Hi MS Gang … has anybody on here had stem cell therapy or know anyone that’s had stem cell therapy? if so is it any good? … any feedback or information would be appreciated, thank you 🧡
Hiya,
So I was diagnosed with MS in September and started on tysabri, turns out that had no effect on the progress of my lesions and as of my last scan there’s at least 10 new ones including some tumefactive, because of this I’ve been shifted onto Ocravus and told if this one doesn’t work either the...
They said 2 weeks.
It's now 3.
Wish they were honest about how long it would take - if they'd said 4wks, I wouldn't be stressing [yet]!
Ah well. Good excuse for a hot choc 😂.