No, I was never misdiagnosed but, once I went to my Dr. with the symptons, it took him 10 yrs. before I was told I had PPMS. I was very upset with this Dr. as he always made me feel like I was wasting his time at each appt. Lorna

After a pituitary tumour was removed I had a condition called Cushings Disease which has similar symptoms to MS . After saying I still didn't feel well , by pure chance a doctor decided to look a my MRI's and tests it was discovered that I had PPMS .

Hello All, I have PPMS - I think at least five or six years but diagnosed just over two. An MRI around three months ago showed a disc bulge on L4/5 which causes regular pain - especially in night/mornings and weakness on that side (right) and thus mobility and balance issues. I know three non-MS fri...

Hi everyone I’ve had spms since 2016, just recently it’s getting worse. My sister Gill had it as well but got Covid in 2021, and was gone within 3 days. Does anyone else have ms in their family ?

I am 78 yrs. old and use a wheelchair outside of my home and a wheelchair inside the house. I have fallen a few times lately and I have to be extra cafeful when I move around. I have PPMS & I feel like I have reached my limit. I have an stretchy band that I try & use weekly. Exercises with a chair...

I have been fighting with PPMS now for 16 years the left side of my body is falling me could you all recommend an exercise for my hand and leg please?

I’m just wondering if anyone with PPMS has anything that they’ve tried. This is a new experience for me so I’m open to suggestions that’ll help.

Hey, just joined this lovely group this week and looking for some contact with others local to me. I’m 51, diagnosed with PPMS- 17 months ago. I’m in Lanarkshire and it would be great to chat, to share ideas, to make some new friends