Finally got a call telling Me there Happy for me to start my 1st treatment which is a infusion which I'm happy and also very nervous specially with the side effects etc
Went in for my infusion of Ocrevus on Friday, ended up fainting when the premeds went in and having a seizure! Doctors said it was down to stress as they struggled to cannulate me & not due to what I was being given. I Was kept in overnight with the aim of doing my infusion today but I came home yes...
Infusion 2moz have a mix of different types of emotions hopping it all goes well have to be there for 830am not 100% sure where in the hospital it is but I am sure we will find it wish me luck 🤞🤞
UPDATE … all went well was very very tired during and after not sure has anyone else had a headache ...
So next month I'm starting my drug infusion therapy and I'm a little scared and apprehensive... So I was just wondering what to expect and any top tips... Thanks 👍
last month i had the injections for tysabri, this month i got the infusion and had the WORST reaction (hives, sweating, pale, nausea, fatigue, black out, sore throat, chest pain, rapid heartbeat etc) anyone know why i reacted this way to the infusion but not the injections?
thanks baes xxxx
The first half dose of Ocrevus went very very well, I am pleased to say all looks good so far:D I am very grateful to have the opportunity to have this treatment!
And thank you to all the NHS infusion staff at St Georges Hospital, an absolute pleasure to have them take care of everyone there!!:)