Shift.ms

29 May 2025 12:37Last reply 29 May 2025 13:57

Remission and Relapses

I was diagnosed at 21, been 10 years now, I’ve been in remission for about 7 years now, and I’ve only ever had relapse while not on treatmen, so I am glad to say my treatment (Ocrevus) is working! What is the longest you guys have been in remission? I do occasionally have fears of relapses but ...

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@chloirene

24 May 2025 21:14

Reoccurring tonsillitis. I’m on week 6 of tonsillitis and this isn’t the first time since being on Kesimpta. My nurses and Gp think it could be due to the Kesimpta and I’ve been offered to switch to ocrevus. Has anyone experienced anything similar or have any advice? Thank you all

First posted on the Shift.ms app

@mickeyk

24 May 2025 21:07Last reply 25 May 2025 01:44

Ocrevus

Has anyone out had the quick ocrevus jab

Sheffield, United Kingdom

@justtim954

24 May 2025 01:15Last reply 25 May 2025 13:30

How long on ocrevus

How long will I be given ocrevus? Do I take it until I die?

First posted on the Shift.ms app

@Helen_Hunt

23 May 2025 13:33

Opting out of DMT

Anyone else got DMT fatigue? I have been on 5 different ones over 20 years, I had to come off ocrevus due to some side effects, and getting an MRI on Sunday so they can get an idea of what to do next. I'm just a bit done with all the hospital visits, tests, side effects etc I am seriously thinking a...

First posted on the Shift.ms app

@CrashTest

23 May 2025 11:28Last reply 23 May 2025 18:47

Blood Test Advice Please

I am doing pre-screening blood tests next month to get Ocrevus. It is notoriously difficult to get any blood out of me from my veins. I super hydrate before hand and they use the smallest needle and try both arms and hands but still nothing. Anyone got any advice on how to make it easier?

, United Kingdom

First posted on the Shift.ms app

@Nina18

23 May 2025 05:45Last reply 23 May 2025 21:48

Switching from Ocrevus to Kesimpta

Well I think that this has been the shortest time frame I have ever been on ANY! type of medication. I was diagnosed in March of this year with heart palpitations due to the medication. I gave it fair shot and I just can not deal with the anxiety attacks feeling, the off beat of my heart once in aw...

First posted on the Shift.ms app

@thriftybeachbum

23 May 2025 01:39Last reply 23 May 2025 15:19

Struggle Bus

Hi! My name is Cheyenne and I was officially diagnosed 2yrs ago but have had symptoms since 2019. Iv hit my crap gap for my treatment plan (ocrevus) and am struggling a hit to keep up with all the end of year things as a parent of an elementary school aged child, as well as her end of year wrap up w...

First posted on the Shift.ms app

@RhiaRoo

21 May 2025 14:30Last reply 25 May 2025 09:08

Work and appointments relating to MS

I'm returning to work part time after mat leave and I have a few appointments come through for both check up with neurology and my next Ocrevus infusion. Where do I stand with regards to time off? If they fall on my working days, do I have to use holiday or a paid / unpaid sick day? Or am I entitl...

First posted on the Shift.ms app

@JoLou50

21 May 2025 13:43Last reply 22 May 2025 11:18

Ocrevus and Crohns

Been on O for 3 years with 0 issues. Now recently diagnosed with Crohns - believed to be as a result of that medication. Can no longer have O - and back to choosing a new DMT. Mavenclad Tecifidara Ponvory Gilenya What a minefield! Any suggestions or recommendations?

Northampton, United Kingdom

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