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@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
9

@lkr6 

29 Jun 2025 06:45Last reply 30 Jun 2025 01:48

lkr6

Optic neuritis

Hello, looking for some words of wisdom, am fairly recently diagnosed (March this year) luckily symptoms have been fairly manageable so far. However Thursday morning I woke up without much sight in my right eye, trip to eye casualty later and diagnosis of optic neuritis. They’ve said it will heal it...
First posted on the Shift.ms app
19

@NadineBeck 

12 Jun 2025 15:36Last reply 14 Jun 2025 13:16

NadineBeck

Is this optic neuritis?

I don't know if I'm over reacting/panicking, but Tuesday i had a grumbling headache, that twice gave me sharp pain to the right side of my head, grumbling very mild headache since. Yesterday I felt like there was 'jelly' in my right eye making sight a little off, but not awful, resolving after a f...
First posted on the Shift.ms app
13

@kawigma 

27 Apr 2025 11:44Last reply 27 Apr 2025 15:12

kawigma

Anybody with Optic Neuritis?

Do you have optic neuritis? Do I? When I get tired, or stressed or sometimes neither. When I move my eyes I'll "hear" the movement. It's sounds like a whooshing noise. Makes me feel seasick and my eyes will ache. Mentioned it to ophthalmologist and he said he had never had anybody report that. I've ...
First posted on the Shift.ms app
3

@tiffduh 

12 Apr 2025 02:10 EditedLast reply 15 Apr 2025 01:01

tiffduh

Has anybody ever experienced Optic neuritis? If so what helped also extreme fatigue and weakness. What helped with that as well. I’ve been diagnosed with RRMS in 2022 l. This is my first bad flare up.

First posted on the Shift.ms app
14

@shiftmsmk 

31 Mar 2025 20:54Last reply 7 Apr 2025 01:47

shiftmsmk

Optic Neuritis

I’d love to hear people’s stories with optic neuritis. Like when did it start? Do you experience it with Uthoffs? How long? One of the major first symptoms I had was double vision. I got it after getting COVID. The double vision went away but I still experience brightness, especially when hot. If ...
First posted on the Shift.ms app
19

@HilaryP 

2 Apr 2025 20:29Last reply 3 Apr 2025 18:22

HilaryP

Yes I know about optic neuritis but I was interested in what an eye specialist can see when they examine the retina.

First posted on the Shift.ms app
18

@Thedonasara 

14 May 2023 06:28Last reply 21 Feb 2025 21:42

Thedonasara

Migraine or optic neuritis

Im so tired of this eye ache its been a while since last time and now here it is again 😣 I have no idea if its migraine or its optic neuritis. I use blue light blocking glasses on daily basis but my job is mostly with pc and it’s super painful to look at the monitor :( any tips for me?
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9

@Theresa_Shaw 

3 Dec 2024 13:17Last reply 3 Dec 2024 23:36

Theresa_Shaw

Optic neuritis MRI

Can anyone tell me how long after a bout of optic neuritis it would show up on an MRI? Is it only when you're in the middle of an episode with active lesions?
4

@misscarter73 

8 Sep 2024 19:19Last reply 9 Sep 2024 09:43

misscarter73

Anybody else have optic neuritis?

I read that in most cases of OP , the eyesight is restored some if not completely after time has passed with or without steroids, however i have had optic neuritis in my right eye with no improvement for 19 years. Anybody else? I can see everything through a very dim view like when you come in a ro...
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First posted on the Shift.ms app
8
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