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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Found 24 results

@wellbelle

27 Nov 2020 20:28Last reply 2 Dec 2020 18:38

wellbelle

Lost my resilience

Really struggled with my emotions this week... Diagnosed in April and started DMT in June, thought I was generally adjusting well. This week told I have new lesions (although small) and found out I have a lump on my thyroid. Mood rapidly swinging from angry, despondent and to spontaneous crying. Be...
London, United Kingdom
  • Diagnosis
  • Newly diagnosed
  • Mental health
  • Treatment
  • Symptoms
  • Which DMT
  • Disclosure
  • MRI
8

@Will_Berard

15 Nov 2020 17:02

Will_Berard

Resilience in Difficult times

Everyone will, I think, benefit from watching this. https://www.youtube.com/watch?v=sMaiIQy3nbw
  • Work and play
  • Symptoms

@Will_Berard

19 May 2020 02:43

Will_Berard

Radio4 Docu on Resilience

Good listen: https://www.bbc.co.uk/sounds/play/favourites/b07cvhrs
  • Diagnosis
  • Mind and body
  • Mental health
  • Work and play

@lisamarieromy

8 Feb 2022 19:52Last reply 9 Mar 2022 21:51

lisamarieromy

Thoughts - feel fry to ignore

I thought I’d share so maybe some can relate I am grateful for my quick diagnosis I am grateful for having access to Tysabri every month I am grateful for MRI’s to know what’s going on in my brain and spine I am grateful my hearing returns when it went away I am grateful for my apartment that fee...
  • Symptoms
  • Family and children
  • Pain
  • Mental health
  • Diagnosis
  • Work and play
  • Treatment
  • Disclosure
  • Relapses
  • Fatigue
8

@Mag_MSOCstudy

10 Nov 2021 02:45Last reply 11 Nov 2021 17:44

Mag_MSOCstudy

Submission drink with student

Out for a drink to celebrate our student Harry submitting his Honours thesis on “Higher diet quality is associated with better quality of life in Multiple Sclerosis.” And congratulations to my nephew and all other VCE students who are finishing their Year 12 exam today. The Melbourne weather sum...
  • Work and play
  • Going out
  • Work and Study
  • Diet
  • Healthy living
1

@Marble76

8 Nov 2021 13:51 EditedLast reply 9 Nov 2021 11:49

Marble76

Repeat infections

Just wondering if this is familiar to anyone else? I was diagnosed with MS last spring (but after CIS several years before and many years of unexplained fatigue). I had glandular fever when I was 18, and repeat tonsilitus/throat infections throughout my teens and into twenties. Feel like periodical...
Hertfordshire, UK
  • Fatigue
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Limbo land
5

@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

Clare80

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Healthy living
  • Treatment
  • Limbo land
  • Coronavirus
  • Which DMT
  • Work and play
57

@PPE_ForTheMind

14 Oct 2020 15:49

PPE_ForTheMind

Going 🚨LIVE🚨 in 10 minutes

Grab yourself a drink ☕️ find yourself a quite space 💆‍♀️ and tune in to our Facebook live session with Gemma & Jo. The pair will be running through some mind exercises and talking mental resilience when living with MS. See you here ➡️ https://buff.ly/2WvxjOF
  • Healthy living
  • Exercise
  • Going out
  • Work and play
  • Symptoms
  • Mental health

@PPE_ForTheMind

9 Oct 2020 08:17

PPE_ForTheMind

World Mental Health Day 🌍

As countries across the world move into a second lockdown, many MSers may be struggling with isolation, anxiety & depression 😔 PPE for the Mind🧠 is a course to help you build your mental resilience 💪 With Neuropsychologist Jo, we've designed a course with tools, tips & ‘mental sit-ups’ to devel...
  • Mental health
  • Symptoms
  • Healthy living
  • Mind and body

@PPE_ForTheMind

26 Jun 2020 07:53Last reply 26 Jun 2020 11:34

PPE_ForTheMind

PPE for the Mind - live session today

If you’ve missed it, we’ve been releasing a video a week as part of a course to help build mental resilience called 'PPE for the Mind'. This week we’re doing things a little differently - join Neuropsychologist Jo and MSer Gemma for a live zoom session, 4pm BST, today (Friday 26th June). Places ar...
1

@PPE_ForTheMind

15 Jun 2020 14:23

PPE_ForTheMind

Have you stopped and noticed anything?

You may have seen that Mike, Gemma and Zoe have been working through some ideas about building mental resilience with Neuropsychologist Jo Johnson… here’s the playlist in case you’ve missed the videos: https://www.youtube.com/playlist?list=PLm0sRroMtds267oPVxXSAR6bJEZ_Vr__f There are new episodes...

@SophieShift

20 May 2020 14:01

SophieShift

PPE for the Mind | Ep 2. Notice.

https://www.youtube.com/watch?v=Ueu-jC6cwuY PPE for the mind is a course designed to help develop mental resilience. Launched during #MentalHealthAwarenessWeek 🧠 the course of videocasts is designed to help us stop, notice what's going on inside, realise our values and start following them with our...
  • Relapses
  • Symptoms
  • Work and play

@SophieShift

18 May 2020 14:26

SophieShift

PPE for the Mind | Ep 1 🧠

https://www.youtube.com/watch?v=7MjH3XWII64&list=PLm0sRroMtds267oPVxXSAR6bJEZ_Vr__f&index=2&t=0s Let's start waking up😌👋 Today as part of #MentalHealthAwarenessWeek Shift.ms is launching 'PPE for the mind'🧠 - a video course we've designed in collaboration with Neuropsychologist Jo Jo...
  • Symptoms
  • Relapses

@Denisa

16 Mar 2016 13:28

Denisa

MS in the 21st Century - MANIFESTO

In recent years, with the rise of the new media and then getting more and more social, there have appeared new ways of contributing to the awareness effort. People’s attention is focused on these little screens we call smartphones and tablets. Their attention span became smaller, time has even becom...
  • Diagnosis
  • Disclosure
  • Research
  • Treatment
  • Which DMT
  • Work and play
  • Accessibility
  • Family and children

@acceptance

5 Jan 2020 20:00

acceptance

Positives✨🐌✨

I thought we could all do with some positive vibes, so sending all mine to you all this day ✨ I read this on Teresawrightjohnsons blog and felt it needed to be shared: ...”Never give up. You are made with the magic that defines winners. Resiliency, tenacity, and hope. MS will not win. Let’s make...
  • Work and play
  • Healthy living
  • Family and children
  • Exercise
  • Treatment

@Minnie_xo

19 May 2022 18:21 EditedLast reply 19 May 2022 22:09

Minnie_xo

Never ending trauma

Hi guys I was advised by my MS advisor to join this app today because I wanted to share my endless trauma regarding my RRMS. I was diagnosed last year with RRMS - it felt like an intensive rollercoaster ride that wouldn’t end and I’m finding it difficult to accept my diagnosis. I was only 21 when...
  • Symptoms
  • Blurred vision
  • Diagnosis
  • Disclosure
  • Healthy living
  • Newly diagnosed
  • Relapses
  • Exercise
  • Balance
  • Family and children
8

@Kayla_Hope

17 Jan 2021 01:57 EditedLast reply 17 Jan 2021 14:07

Kayla_Hope

My MS-iversary

This is a little something I wrote for my social media today and I thought I would post it here as well. This is purely written from my experience and not meant to invalidate people who are struggling with their diagnosis. Posts like these are part of my grieving process and they help me to remember...
Guelph, Ontario, Canada
  • Work and play
  • Diagnosis
  • Money
  • Meet ups
  • Treatment
  • Research
  • Relationships
  • Going out
  • Numbness
  • Positives of MS
3

@samuelmanual

4 Oct 2020 14:58Last reply 5 Oct 2020 20:03

samuelmanual

Homelessness & MS

Right, where to start? I've SPMS, diagnosed 20 years ago. I'm currently employed full time, on a 'middling' salary. I've also recently separated from my wife. I also was hospitalised with a relapse in the summer, the hospital discharge team assessed my rental accommodation as unsuitable as I'm full...
Hackney, England, United Kingdom
  • Accessibility
  • Work and play
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Relapses
  • Which DMT
  • Balance
  • Secondary progressive
  • Relationships
3

@Stephan_Oxman

4 Sep 2020 00:21Last reply 4 Sep 2020 10:28

Stephan_Oxman

Thank you for this

In 2002 a Monkey snuck into my eye when I wasn't lookin. Made a residence in my field of VISION. No bullshit cant get free and Shine looks just like me... I look forward to defeating this monster with you all. Attitude is everything, the only thing. See to keep all in rhythm finding about tomorrow k...
2

@PPE_ForTheMind

15 Jul 2020 09:17

PPE_ForTheMind

Mental sit-ups

Thanks to everyone who came to the live PPE for the Mind session this morning with Gemma and Jo - if you were there, say hi below 👋 - If you’ve missed any episodes and have no idea what PPE for the Mind is, we’ve been releasing a video a week about how to build your mental six pack and build a resi...
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