@wellbelle 

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wellbelle

Lost my resilience

Really struggled with my emotions this week... Diagnosed in April and started DMT in June, thought I was generally adjusting well. This week told I have new lesions (although small) and found out I have a lump on my thyroid. Mood rapidly swinging from angry, despondent and to spontaneous crying. Becoming to realize I’m really emotionally fragile following my MS diagnosis and no longer deal well with bad news. Everything feels outside of my grasp at the moment. How do I get any sense of control with my health if the situation keeps changing
@Vixen

Hello @wellbelle, so it's been an especially rough year for you then! You will have really been through the wringer, and it's such a massive shock. Most people will tell you that it takes about a year to come to terms with a diagnosis. It's been for for me and although mentally I'm doing OK, this is not what I had planned for my life. For now, you need to go with the flow and try not to think too much into the future. Thigs will become clearer in time, but you need to focus on the little things, focus on what gets you through the day. Optimise your health; eat, sleep and drink healthily, and take time to pamper and spoil yourself. You are recovering, physically and mentally, and both these things need to adjust to this new state of being. At the moment, the diagnosis will seem all-consuming but you need to get that resilience back, so that you realise you really are more than a very annoying diagnosis. I have been taking Tecfidera too and it seems to have prevented any lesions. Focus on the things that make you happy, and make them a bigger part of your life for now. Chocolate, wine, buying presents for your kids, reading, listening to music. Always find a window every day for 'me' time. My sister has MS and is your age, and she lives in your area too, so you can look out from your window and know that apart from us in cyberspace, there are real people around you who understand your struggle. It helps to know your not on your own! Oh and one more thing; after being diagnosed, I used to give myself an hour a week to do research and check out what's going on in the world of MS; if nothing else it can bring you hope for the future x

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@Henrietta

Oh that sounds truly rubbish, not at all surprising you’ve lost a bit of your resilience... I don’t know, I - like you think - aim to be resilient and accepting with a kind of ‘why not me?’ rather than ‘why me?’ approach to MS and life in general but sometimes it’s just not possible. Maybe this year with all its COVID dreadfulness has had more of an effect on you (on all of us?) than at first realised? All I can say is don’t beat yourself up, let yourself have a blip, a brief dip in resilience and be super kind to yourself too 🤗 - you’re still processing a dreadful blow as however much we can all learn to live with MS I don't think any of us would choose to have it... x