#painful - Shift.ms

@ErikHart

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Can anyone tell me how painful a spinal tap is?

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@show

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I’m tired. At times I just want to give up . 😢💔I’m more tired emotionally than anything else . Falling , numbness everywhere , painful injections I’m just tired of it all .

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21

@lincolnramsay

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Does anyone have a suggestion for footware (sneakers) that don't hurt? The nerve pain in my feet make walking especially painful.

First posted on the Shift.ms app

19

@TrudyG

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Painful Legs

Hi need some advise. Mum has MS and lives with my brother. Over the past year she has lost a lot of mobility in her legs. Now should we push her to get up and use them as we have been told “use it or lose it”. She complains of pains in the legs and they are especially painful the next day if we do p...

15

@Kinga

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Lumbar Puncture and painful stiff neck?

I had a LP done 4 days ago and the pain in a neck when Im sited just got worse today. It's really stiff and hurts more when I move head or talk. Is it normal? Or should I see a doc? Im fine when I'm flat in bed but can't work or sit at all...I do drink a lot coffee and water etc After a LP doc tol...

12

@MarnieV

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I've been taking copaxone for 16 years has anyone else been taking it for this long. Do you still have places to shoot without bleeding or lumps. The shots are getting more painful every time and I hate having to take the injections every 48 hours

First posted on the Shift.ms app

12

@Hooper

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Painful to sit

Hi..I have had two cases of optic neuritis and been diagnosed with ms but for the last year I have also suffered with similar symptoms as coccydynea. Xrays and MRI shows no sign of coccyx injury and today doc tells me after internally examining my rectum he thinks my painful rear could be ms related...

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@Maize

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So I have brain lessons and today mid morning my lower back suddenly became very stiff and painful, it hurts to get up! I haven't done any lifting so I don't think I pulled anything.I am concerned about spine lessons. Ugh, I don't know what to think. Any ideas or suggestions, anything is helpful!!

First posted on the Shift.ms app

11

@extrakate

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Is MS painful?

My GP and MS consultant and nurse all agree that MS is not, usually, a painful condition. I am in constant back pain which they all say can't be due to my MS. But neuropathic pain is part of MS. Is anyone else in pain? and what do you do about it?

10

@Jpetridish

EditedLast reply

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app

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