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Recent activityNewest posts

@Jpetridish 

20 Jul 2025 02:33 EditedLast reply 21 Jul 2025 01:20

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
9

@Tehya1026 

17 Jul 2025 17:39Last reply 19 Jul 2025 00:53

Tehya1026

Something super strange...

Okay so for the last 8 or 9 months I've had this reoccurring issue and I have no idea what's going on. When it first started it was like once a month and then it was once a week and now its 2-3 times a week. I can be doing the most simple tasks like pulling up my pants or socks, brushing my hair, or...
First posted on the Shift.ms app
12
Unpublished

@MayaCardwell 

17 Jul 2025 00:55

MayaCardwell

Blast Away Your Boredom: How Block Blast Takes Match-3 to a New Level

Website: https://block-blast.online/ In the ever-expanding universe of online puzzle games, finding one that truly stands out can feel like searching for a needle in a digital haystack. Yet occasionally, a gem emerges that manages to polish a familiar concept to a brilliant shine. Block Blast is pr...

Block Blast

Play Block Blast

block-blast.online
New York, United States

@CrystalNiccole 

4 Jul 2025 01:35Last reply 6 Jul 2025 20:52

CrystalNiccole

Anyone Else Have Internal Thigh Vibrations?

Hi All, I am newly diagnosed and I'm having a symptom that I haven't found many have (on YouTube anyway). I'm walking and running regularly in an effort to build strong muscles in the wake of my dx of MS on June 3rd. Currently, I have no visible tremors, rather instead I feel this quiver/buzz/vib...
First posted on the Shift.ms app
17

@jumpingJacks 

1 Jul 2025 21:36 EditedLast reply 16 Jul 2025 16:59

jumpingJacks

28 Days Later, 28 Years Later: The MS Edition

They didn’t catch a virus. They caught MS. It started with a tingle. Then came the mysterious fatigue no one took seriously. By 28 days in, society hadn’t collapsed but a concerning number of people were falling over for no reason, losing feeling in random limbs, and quietly Googling “why does my e...
First posted on the Shift.ms app
19

@plane 

20 Jun 2025 13:48Last reply 21 Jun 2025 10:24

plane

For the ladies does the unique symptoms show up during certain cycle timing

Ok so long question here is some clarification right before my normal menstrual cycle my unique issues amplify. Trying to get hold of issues with this. My unique issue besides massive pain is the electrical current that discharges in way of static shocks or electrical sparks comming from my body. Li...
First posted on the Shift.ms app
1

@Gem1 

19 Jun 2025 16:16Last reply 21 Jun 2025 09:32

Gem1

Too hot. 🥵

Yeah yeah. I’m British. It’s too hot and I don’t like it. My right hand and right foot are burning and so painful. And I’m TOO TIRED. 🥱😂😂😂
First posted on the Shift.ms app
7

@Calthea 

12 Jun 2025 15:19Last reply 12 Jun 2025 21:12

Calthea

Help me stay positive …

I need to remember what I believe. That is OK to struggle, but not to live there. These pseudo flares scare me. At least I hope they’re not symptoms of something new. My brain feels muddy. The left side of my body is freaking out. The spasms are so painful. I would value and appreciate any po...
First posted on the Shift.ms app
3

@Sophieee 

11 Jun 2025 20:42 EditedLast reply 12 Jun 2025 10:27

Sophieee

Potential Issues with kesimpta?!

HELLO! I’ve been on kesimpta for 17 months, and ever since joining, I’ve had many weird and wonderful issues arise. Such as my legs, they’re suddenly weaker, painful, and tired. I’ve had non stop bladder problems, always in immense pain, and uncomfortable. My speech has gone out the window. I’ve no...
First posted on the Shift.ms app
12

@BamAnderson88 

11 Jun 2025 15:09Last reply 11 Jun 2025 17:34

BamAnderson88

Painful hands

I was diagnosed in November. So I'm still learning. This past week my hands have been swollen and hurting. All the way up to the finger tips. Is this due to MS? My lower back has been hurting too but I know I have disc damage already
First posted on the Shift.ms app
10
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