#painful - Shift.ms

@Jpetridish

20 Jul 2025 02:33 EditedLast reply 25 Jul 2025 03:49

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app

10

@BamAnderson88

11 Jun 2025 15:09Last reply 11 Jun 2025 17:34

Painful hands

I was diagnosed in November. So I'm still learning. This past week my hands have been swollen and hurting. All the way up to the finger tips. Is this due to MS? My lower back has been hurting too but I know I have disc damage already

First posted on the Shift.ms app

10

@Wyndeem1

19 May 2025 11:51Last reply 19 May 2025 13:07

I've been experiencing what I think is nerve pain for a week. My skin hurts all over, feels like when you have a sunburn. Barely touching my skin is painful. I'm scared. Is this a flare up?

First posted on the Shift.ms app

2

@MarnieV

30 Apr 2025 04:44Last reply 2 May 2025 00:48

I've been taking copaxone for 16 years has anyone else been taking it for this long. Do you still have places to shoot without bleeding or lumps. The shots are getting more painful every time and I hate having to take the injections every 48 hours

First posted on the Shift.ms app

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@MarnieV

27 Apr 2025 07:32Last reply 27 Apr 2025 18:10

Does anyone have burning in their feet I do every night keeps me awake and makes standing and walking painful

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8

@tinyhumantamer

20 Mar 2025 14:27

Has anyone gone through the Lemtrada process? I have done it 3xs. I am sinking into another attack slowly and am feeling bee stings and shocks in my body that are leaving my muscles tight and tired! The stings are very painful and are causing problems when I’m out and about! Any suggestions other than rest to calm them down? I really don’t want yet another steroid!

First posted on the Shift.ms app

@SIMONA2

14 Mar 2025 11:05Last reply 14 Mar 2025 23:18

Gabapontin swollen painful

i have been on the gabapontin since last may and the pain and my stomach is so swollen it feels like after eating there is no room even when i eat small amounts of food, i have had a swollen stomach for a few years but nothing like this, i worry about changing to a different drug because i have lot...

Montelimar, France

2

@bigles1962

14 Feb 2025 12:35Last reply 15 Feb 2025 13:58

Waking up painful feet and legs

Wife ms wheelchair bound suffering with painful feet and legs only when in bed goes to sleep fine within 2 hrs awake in pain as anybody suffered from this

First posted on the Shift.ms app

3

@ClareBfromS

30 Jan 2025 15:18Last reply 9 Feb 2025 22:39