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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Recent activityNewest posts

@norfolkgal 

Last reply

norfolkgal

Hair loss

My hair is getting thin. Every time I shower I have to clear the plug hole for all the water to drain & the same every time I brush my hair, brush needs clearing. That's not including the few over the course of the day. I think it's since I started Gilenya last December, certainly getting mo...
  • Treatment
  • Gilenya
  • Which DMT
20

@dulcheisa 

Last reply

dulcheisa

Hair loss

Anyone deals with hair loss?
First posted on the Shift.ms app
18

@lw2208 

Last reply

lw2208

Tecfidera hair loss

Hiya. Im due to start tec soon. Reading the side effects they seem they can be quite bad however i can probably manage these. The one thing im really worried about is hair loss. Anyone suffered this and if so how bad??? Im trying not to be vain but i have thin hair as it is and my hair is a big part...
  • Treatment
  • Tecfidera
15

@michael 

Last reply

michael

Aubagio and hair loss

I am starting on Aubagio tomorrow and wanted to ask peoples experience? I took Avonex for 10 years, ( luckily no progression? Just hated injecting myself so am giving Aubagio a go. My main concern is the hair loss, how thin does it get, I'm 40 and proud to have thick hair, sorry if that sounds vain.
  • Aubagio
  • Treatment
  • Avonex
  • Symptoms
  • Diagnosis
15

@Noshin 

Last reply

Noshin

Hair loss and Tecfidera

Hi MSers, This is my first post- I think this is an really helpful forum where you are connected to a 'family' who can actually help you by their first hand experiences. Any way I'm beginning to feel quite down because I've lost more than half my hair. I've been taking the necessary vitamin supplem...
  • Tecfidera
  • Treatment
  • Vitamins and supplements
  • Healthy living
  • Diet
15

@KLouise 

Last reply

KLouise

Tecfidera hair loss

Hi everyone, I've been on tecfidera for about ten months now and for the last few months I've been experiencing noticeable hair loss - every time I wash or brush my hair I lose a handful. Has anyone else experienced this? I've noticed a few Internet posts about it, but when I told my MS nurse she sa...
  • Diagnosis
  • Disclosure
15

@SafiaLondon 

Last reply

SafiaLondon

Hi everyone... I am on ocrevus since 2019. Has anyone had hairloss with this treatment ?

First posted on the Shift.ms app
13

@Usedtoskate 

Last reply

Usedtoskate

Worried about hair loss.

Hi all, I start Kesimpta in 6 weeks and I’ve been hearing horror stories of hair loss. Is anyone here taking it and have you had hair loss?
Hull, United Kingdom
  • Treatment
  • Symptoms
First posted on the Shift.ms app
12

@Gemma87 

Last reply

Gemma87

Tecfidera and hair loss?

So ive been on tecfidera for two weeks and ive started to notice a lot more hair coming out into my hand,hair brush and hair bobble. I have very thick hair so im trying not to panic at the moment. I noticed that ppl had commented on tecfidera and hair loss but didn't really take much notice of it. ...
  • Treatment
  • Tecfidera
11

@CurlyClaire 

Last reply

CurlyClaire

Hair Loss

Hi, has anyone taking Tecfidera noticed increased hair loss when washing or brushing their hair? :-)
  • Tecfidera
  • Treatment
11
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