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Recent activityNewest posts

@Lifesucks 

21 Apr 2025 16:52Last reply 21 Apr 2025 17:36

Lifesucks

Do you need to take steroids for the first dose of Ocrevus?

My neurologist mentioned they usually do that before especially for the first dose. And I will genuinely refuse to take steroids. My hair is my world and steroids cause acne and temporary hair loss and that will send me into a deep depression and worse too. So can I refuse steroids ? Because then I...
First posted on the Shift.ms app
3

@doflo90 

30 Mar 2025 11:00

doflo90

Pumpkin seed oil capsules yes or no?

I would like to try these in my diet yo help with hair loss & bladder issues ( perimenopause not MS related) but I'm not sure if it's one of those supplements people say not to take and I dont want to take anything that will aggrevate the MS. Any advice?
London, United Kingdom

@AmberCharissa 

25 Jan 2025 12:47Last reply 27 Jan 2025 03:07

AmberCharissa

Will I lose my hair?

I read on another MS forum that with Ocrevus many were experiencing significant hair loss?? I haven't yet because I'm only my two half doses in. Dose 2 is in May. Anyone have experienced this with tips to lessen that side effect in the future? Thank you!
First posted on the Shift.ms app
17

@Ceire 

7 Nov 2024 14:58Last reply 9 Nov 2024 20:15

Ceire

Hair Loss Tysabri?!

For all my Tysabri peeps - maybe so for the ladies - hair loss on Tysabri?! While it's not a known side effect, I have noticed my hair has gone so thin since I started on Tysabri! As well as that I am loosing a significant amount of hair on a daily basis, especially when washing my hair! Anyone expe...
First posted on the Shift.ms app
7

@Liwia 

25 Aug 2024 21:58 EditedLast reply 27 Aug 2024 13:12

Liwia

Partner’s hair loss

Hello. My partner is on ocrevus and he’s got MS. He’s been having quite a noticeable amount of hair loss over the past few months . Is this normal with MS or is it a sign of some deficiency that isn’t MS related ? I’d appreciate some advice since I’m learning to a understand his MS and how to help.#...
  • Relationships
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First posted on the Shift.ms app
7

@ruhena2301 

19 Jul 2024 15:41

ruhena2301

Hair loss / hair growth

Has anyone experienced hair loss or hair growth with ocrevus?
First posted on the Shift.ms app

@Tasha_ 

13 Jul 2024 21:54 EditedLast reply 3 Dec 2024 23:59

Tasha_

Ocrevous and hair loss?

Hello, had my first full dose about a month ago. Realising my hair is coming out a lot.. is this a side effect? Also my skin is dry, is this maybe a side effect? Thanks in advance!
  • Treatment
5

@Usedtoskate 

23 Jun 2024 17:33Last reply 3 Jul 2024 01:59

Usedtoskate

Worried about hair loss.

Hi all, I start Kesimpta in 6 weeks and I’ve been hearing horror stories of hair loss. Is anyone here taking it and have you had hair loss?
Hull, United Kingdom
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First posted on the Shift.ms app
12

@Ellierp 

31 May 2024 07:30 EditedLast reply 1 Jun 2024 01:00

Ellierp

I think I have MS

I have been struggling with my health since the birth of my daughter (20 months old) my main issues are muscle pain, nerve pain, GERD, hair loss, migraines, double vision, depression, anxiety and fatigue. How does a diagnosis happen? My daughter has been diagnosed with arthritis so I'm already high ...
Bristol, United Kingdom
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2

@Natters17uk 

25 Apr 2024 18:38Last reply 26 Apr 2024 18:49

Natters17uk

Hair snapping off at 1-3 inches

Hi everyone Not sure if this is my MS, perimenopause or genetics or a combination of all of them. Background, I've had waist long hair since childhood. My mum had hairloss during cancer treatment in her 40s. I'm 41. Shortly after my first and second ocrevus infusions I noticed my hair was becoming...
Plymouth, United Kingdom
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5
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