#disability - Shift.ms

@clars64

24 Mar 2025 20:20Last reply 24 Mar 2025 23:42

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States

First posted on the Shift.ms app

@KiKiKay

22 Mar 2025 23:00 EditedLast reply 22 Mar 2025 23:29

Just Joined-Hello☺️

Hi all! Dx 10/31/23 (wished it would have been a trick or a treat but here we are….) I’ve been on Tysabri since 01/03/24 and, I’ve been on Short Term Disability once already. Looking to find an online community along with a local one.

Philadelphia, United States

First posted on the Shift.ms app

@EliElisa

18 Mar 2025 14:57Last reply 18 Mar 2025 21:58

Rights in the workplace

Hi everyone! I have a question I’m hoping you could help with. What are my rights as An employee in terms of the absences from work due to MS, in particular those related to Ms related appointments, treatments or new relapses and courses of steroids that might take a while to recover? (Are they acc...

First posted on the Shift.ms app

@Peej

14 Mar 2025 16:38

Disappointed

I was supposed to be going with friends to the disability convention in Birmingham next week but they've cancelled on me and now I don't think I'm going to be able to go, I was really holding out hope for finally finding something/one there that can help me get to a better quality of life but now I'...

First posted on the Shift.ms app

@Trevor-Best

13 Mar 2025 13:07

Support where you need?

#IHAVEMS The Chief Executive of the MS Society (Nick Moberly) was the Chief Executive officer at Kings College Hospital , when they’re ’mistake caused my disability, after the succesful HSCT Treatment that I had. He ignored my letters to him, but he had Julia Wendon respond about the issue. The deta...

Croydon, United Kingdom

@JaneH

8 Mar 2025 09:30

Accessibility?

In the last few years I get around with or on wheels due to MS disability, so I need to know about accessibility. And I don’t know if it’s just us dog loving Brits but I started to notice a strange phenomenon sometime last year when checking out accessibility of venues. Here’s my rant about it from ...

First posted on the Shift.ms app

@Peej

7 Mar 2025 03:27 EditedLast reply 7 Mar 2025 11:54

Just incase you didn't know

Picking yourself up by the bootstraps is physically impossible, the origin of the saying was sarcastic to imply a task is impossible. Yes hard work is important but guess what? Living with a disability IS the hard work, if sustaining a healthy diet, personal hygiene and home maintenance it too diff...

First posted on the Shift.ms app

@Peej

6 Mar 2025 23:09

NAIDEX, disability convention Birmingham

Anyone else going to naidex this month? Or Anyone been to it before? Me and 2 of my friends are going but I'd just like to know what to expect, I'd also love to meet some more disabled people irl so I thought I'd put feelers out there 😁

First posted on the Shift.ms app

@GrammyMissy

6 Mar 2025 01:40Last reply 6 Mar 2025 03:31

Anyone on disability? If so how long did it take. If not how long been trying? Lawyer or no lawyer?

First posted on the Shift.ms app

@Peej

5 Mar 2025 02:16

Just when I thought my mental health couldn't get worse

My dad decides to berate me about my weight and lack of life. I'm not sure what I can do anymore to get people to understand I'm in constant agony and that being bed bound is not a choice I'm making. That I actually need help to do the most basic life tasks to be able to live rather than just sur...

First posted on the Shift.ms app

Shift.ms is better if you're logged in

Topics