#disability - Shift.ms

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RRMS SPMS Treatments Ranked by How Well They Stop Relapses That Cause Damage to Your Brain, Spinal Cord & Optic Nerves

Relapses in MS are attacks where your immune system wrongly attacks important nerves inside your central nervous system (CNS) that means your brain, spinal cord, and the nerves connecting your eyes to your brain. These attacks cause damage that can lead to disability. The right treatments help stop...

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@gigitiger

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Working with disability

Does anyone know if I can work while on disability

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@KajunDakota

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How do you afford DMT's

I was just put on Kesimpta in June. Alongside is helping me get my meds, but my insurance isn't covering much of the share (that's putting it mildly. They don't cover crap) when the resources run out, how will I beable to pay for my meds. No longer working, denied disability, I'm the broke Moma ...

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@zvonko

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Tysabri fatigue

I’m curious if anyone had severe fatigue accompany their initial Tysabri injections? I’ve been on Rebif which they took me off because I was having constant fever symptoms associated with the medicine. Then I went on ocrevus and I loved it. Felt like I was somewhat back to normal. However, whe...

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@AndersonRa

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Sooo irritated 😣

I can’t understand for the life of me why people who worked hard all there lives get punished for disability…I’m told my social security is too high bc I made too much when I was working but do the math…no food assistance no housing assistance no Medicaid…how are you supposed to live a check once a ...

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@Jimmy369VT

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

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@bethwheels

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Loneliness

Has anyone else had it where they are wanting to make friends but people in your area don't seem to have a disability and people are just not willing to have a friend who's in a wheelchair? I don't have any friends anymore other than my partner and the loneliness is something else 😅

, United Kingdom

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@Melanatedmsmom

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So I’m terrified

Not of the diagnosis but of the fact that im about to make the move to stop working all together. I have optic neuropathy in both eyes now and im going blind. I can’t make out most things and driving is a hazard. I’m about to go on short term disability for the next few months to rest my eyes and sp...

First posted on the Shift.ms app

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@Abz671

PIP/ADP?

I wanted to know what people’s experience of applying for (previously known as PIP) ADP? I applied for PIP the year I was diagnosed and I scored 0. So to them my disability does not affect any aspect of my life. I obviously wasn’t hitting enough of their buzz words! I also think because MS is life...

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@Tyrus

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Time to lawyer up?

After a 35-year remission, my MS relapsed in early April. I scheduled an appointment with a neurologist, but the earliest available was weeks away. In the meantime, I reached out to my PCP, who immediately set me up for a three-day Solu-Medrol infusion. I told him that’s what had worked best for me ...

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