I'm too the point where I cant stay on my feet long at work. I'm having mobility issues and I'm constantly tired and fatigued. I need guidance and advice on how I can acquire disability perhaps, and what options I have.
For something titled "sex, drugs and rock and roll".....everyone is very coy about the SEX word. So I'm biting the bullet and starting this one.
Who was at MS Life 2012 and went to the Sex and disabilty seminar?
I will fess up!
Right, a bit of an insensitive question and I am sorry to ask this but curiosity has got the better of me.
I got diagnosed in March 2012 with highly active RRMS and got put straight on Tysabri. I'm certain my first relapse was Spring 2010.
As far as walking etc goes, you would never know anyt...
Hi
I was diagnosed just over a year ago (at 40) after optic neuritis. I have had no other relapses and my MRI has been status quo since last year. Can this "status quo" last? I am currently very active but know that this can change at any time.
Do many MSers not have any physical disabilities i...
I've had an...interesting life up until this point, one that can be dissected into two separate parts, the time before I went to university, my childhood and my time in the ten years since. Oh and my time since my diagnosis, so really that's three parts.
The time before I went off to uni was one...
Hi everyone. I’ve been on the furlough scheme since my diagnosis basically and I’m not fit for the job I had any more I know this. My employer didn’t really keep in touch and I haven’t a clue where I go or what happens from here. Do I have to declare myself unfit for work or is that a doctor?
Feel...
Hello, my name is Jessica and I am looking for disabled users that are interested in joining me in developing a collaborative hub that focuses on the re-designing of product aids (medical and non-medical aids) that are designed for a disabled market that you perceive as unattractive.
Would love to...
Does anyone know why people with epilepsy are entitled to a railcard but not people with MS? I don't get PIP and I do still drive but only short distances because of the fatigue, and I now get the train every 4 weeks for my infusion. Seems unfair that I can't at least get a discount 🙁
Hi everyone. I've been lucky so far in that my symptoms have only ever been sensory and I've only had sensory relapses. When I asked my neuro if he thinks I'm likely to stay as fortunate (I know it's impossible to predict case by case but was thinking about a rough comparison of the pattern of patie...
Hi all. I have contacted my local MP re some of the inequities in the governments attempts to save money through penalising disabled people....
He is apparently contacting the MS Society and the MS Trust to find out their take on the issue. I know the MS Society has tried to make some progress in t...
I have been trying to sort the reasonable adjustments stuff out which has to be done before an application for the Access to Work Scheme can be made. I work at one of the largest Universities in England which has the double tick disability logo. This is meant to show it is responsive and supportive ...
Hi everyone.. in desperate need of some advice tonight regarding my future and treatment plans...
This is a long, LONG story but i’ll just try to keep to the essential points as i don’t want to bore you all to death!!
But basically, I was diagnosed with MS in May, but told I would need a lumbar pun...
Some of you will know that I have a bee in my bonnet about the inconsistency between acts of parliament regarding the use of the word disabled.
Why is this important: MS is one of only three conditions listed as a disability in the Equality Act 2010.
What does it mean: When there is any referen...
Hello, I am undergoing tests and waiting for more but it appears likely that I do have MS as advised by doctors.
I am self employed and have not only life insurance but also permanent disability insurance. Has anyone else claimed on the latter due to MS, I know underwriters will try to do everythi...
Has anyone got experience of this scheme: https://www.disability-card.com/
Or any other similar one (there are national ones)
I did find a couple of posts here about a disability railcard. Googling threw up some badges around face covering exemptions too.
Thoughts?
Hi,
I'm posting in here in the hope that anyone may feel or have felt the same. Over the last 7 years since diagnosis, my MS has progressed (as progressive conditions like MS often do) and my 'good' spells seem much less frequent these days and I'm unable to 'get away' with a lot less than I previo...
I am finding it hard to accept not working and not having the cash flow I used to get. I was made redundant and can't find work, nothing to do with my MS. In the old days when I could walk without a crutch or get weak from walking for 10mins, I would do any job but I just can't do the same work. Ok ...