#autoimmune - Shift.ms

9 Feb 2023 15:34 EditedLast reply 9 Feb 2023 22:26

Autoimmune

Hi all, I hope you are all doing well I haven’t been on here as 2022 was not very kind. I now have Secondary progressive MS, epilepsy and no I’m not over weight diabetic. My Bowels stopped working last year and I had bad abdominal pain lost weight so got put on the two week cancer screening all fin...

4

@KennyG

25 Aug 2025 20:08Last reply 25 Aug 2025 23:40

Hi everyone, I'm just wondering if someone after being diagnosed with MS and being under medication, develop another autoimmune disease like Chrons ! Let me know please, I'm concerned that probably I'm developing a second autoimmune!!!🤕

First posted on the Shift.ms app

4

@Jimmy369VT

29 Jul 2025 21:10

Since I have moved to Florida from Vermont, I have been learning a lot more about MS as it’s whole until I actually found a neurologist that was actually specializing in MS. I did not know that not only is it a nervous system problem, but it is also autoimmune and I did not know That extreme cold and extreme heat can actually make flareups worse and if it is hereditary, it can also make the MS come out quicker. I did not know that I did 13 years making snow at a ski resort in Vermont and then when I moved to Florida, I did Five years underground construction and I always wondered why I felt funny and triple digit heat, but it wasn’t heat stroke, and there were days where if it got below zero or into the negative temperatures, my body would tighten up intense up like I was getting squished by a bow constrictor. I went years until my primary care physician told me to go see a neurologist, and then he gave me the evaluation told me to take an MRI. They did not find anything in my spine, but my brain said a lot is what the neurologist said, and then he started poking and stab in the bottom of my feet with stuff and doing a tuning fork all over my body and when I told him I couldn’t feel it in certain spots and then in other spots, I could just slightly feel it or it just felt like a ant crawling on my leg or on the top of my foot. I’ve never seen anybody that evaluated me for anything get so concerned, looking on their face and then now he wants me to do a spinal tap, which I am doing August 8. I already know it’s not going to be like the movies or television shows where it’s gonna be excruciating painful off the back. It’s going to be the next day. I’m going to have to recuperate. I have several family members with MS as well so they are kind enough to give me peace of mind explaining to me how they felt after all the stuff they had to do and I am pretty much doing the same thing and my neurologist did put me on something. I can’t remember the name of it or pronounce it but my flareup weren’t so bad, but then my colitis started getting worse so he took me off it and now as long as I just stick to easy tasks, I’m not so bad but it hurts sometimes to move. I can relate to how my mom felt towards the end now, she said she was in so much pain, but because her mind was slipping back into a childish state of mind. She had good spirits about her. My dad just turned into a zombie and he said that he only focused on walls or focused on watching a television show because it was the only way he could control the pain. I meditate to help with my pain and I listen to the doctors and follow my prescription regiment, but there are still days where it feels like I got hit by a truck and I just stood up out of bed. The scary days are when I can’t get out of bed altogether. I do not know if anybody else has ever felt like this, but there are days where I wouldn’t wish this on my worst enemy and to get places of business to understand what you’re going through and to explain to them OK if you have me do these tasks then don’t expect me to come to work tomorrow because I won’t be able to move. I have been rejected so many times my wife just finally decided to fill out for disability and now between my attorneys and Social Security I have my doctors not only giving me tests and labs for their peace of mind but now I have them filling out papers and forms for my attorneys and Social Security and it’s been like that for almost 3 years now every time I think we’re getting close I have more papers in the mail for my doctors to fill out or my neurologist there are days where I just wanna give up but then I think about what it would do to my family and then I sit with my son and play video gamesuntil the feeling goes away, and I snapped back into my normal self

First posted on the Shift.ms app

@Mondaygirl22

29 May 2025 12:19Last reply 30 May 2025 03:54

I’m reading the health comments and how is that skunk weed marijuana are supposedly coming from Mexico in every country around the world I don’t believe that Mexico was shipping it to every country around the world is this government I’m just curious cause it seems like that would be a government thing but then why them that would be horribly shameful and how does some countries have it illegal although it’s being shipped in is that fair to punish the people for what they get? I don’t believe it is it should be legal around the world if they’re shipping it around the world shouldn’t it? Especially when it’s a lot of people with health problems using it diabetes, a lot of autoimmune disorders lotta stomach problems and it’s kind of weird how it’s so helpful and yet the government uses it to punish people it makes no sense?

First posted on the Shift.ms app

8

@Jordanm

22 Apr 2025 20:46 EditedLast reply 24 Apr 2025 23:20

Gabor Maté Autoimmune Theory

I am wondering what are other people’s takes on Gabor Maté’s theory on MS. “Maté argues that chronic emotional stress, plays a significant role in the development of autoimmune diseases like MS. Maté believes the mind and body are inseparable, meaning chronic psychological stress directly affects...

North Berwick, United Kingdom

First posted on the Shift.ms app

29

@bunnylv

14 Jan 2025 08:18Last reply 15 Jan 2025 08:38

How many people have MS with other autoimmune disorder?

Hi, I hate the way my body has decided to betray me. It started with MS 15 years ago. Not a big deal in a way before it was official I had pretty much figured it out. I am an NP. In March of 2021 while at work in an ER. I told a coworker I thought I was have a heart attack we got me into a room an...

First posted on the Shift.ms app

3

@bvida

19 Dec 2024 17:34Last reply 20 Dec 2024 00:32

Is anyone or has anyone been on two immune suppressants at once? Treating two autoimmune diseases here and afraid this will be my only hope.

First posted on the Shift.ms app

4

@JustQuinnC81

16 Nov 2024 23:47Last reply 17 Nov 2024 02:53

Everyone with an autoimmune illness suffers from the EBV virus.

When it gets into your body, It gets the lay of the land, and depending on how your diet is, it will set a home in a certain part of your body. If I'm not mistaken, I think for people with MS it's your kidneys.

First posted on the Shift.ms app

3

@Djcox

26 Oct 2024 19:41Last reply 13 Nov 2024 17:19