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Recent activityNewest posts

@Rage_against_ms 

8 Jun 2025 13:38Last reply 8 Jun 2025 13:49

Rage_against_ms

Dmt worn out

When do you feel your dmt has worn out, My next round of Ocrevus is August, when do you start feeling like it running out? I'm not getting wobbly yet that usually the first sign that it wearing out.
First posted on the Shift.ms app
1

@Sarahplus3 

6 Jun 2025 02:27Last reply 6 Jun 2025 08:55

Sarahplus3

Hey guys does anybody know good vitamins for rrms I’m on a dmt and other drugs but I’m trying to be as healthy as I can

First posted on the Shift.ms app
8
Unpublished

@Michellejohn35 

2 Jun 2025 18:17

Michellejohn35

ecently had my MRI results and (as I kinda suspected after a rough few months) had new lesions.I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard few months I've really isolated myself from people (some I'm unsure even how to reach out to again now) and live alone alone some of the time when my four children are at their mum's. Positive news is, they've mentioned Ocrevus and Kesimpta, which are obviously higher efficacy treatments. Could I ask for any advice people have around these DMTs, please? If you've seen me ask on Facebook or Instagram, then feel free to ignore and not repeat yourself.

First posted on the Shift.ms app

@MK24 

2 Jun 2025 17:22Last reply 4 Jun 2025 11:34

MK24

Ocrevus or Kesimpta

I recently had my MRI results and (as I kinda suspected after a rough few months) had new lesions. I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard fe...
, United Kingdom
First posted on the Shift.ms app
15

@KarenMrMoose 

2 Jun 2025 08:43Last reply 4 Jun 2025 18:25

KarenMrMoose

Walking

Hi all.. do's anyone else feel let down by their doctors.. My consultant is more bothered about how far I can walk than anything else, I have vision problems but to them it's not a problem to me it's a nightmare and all they keep throwing at me is physio to help my walking... I'm not on DMT as my bo...
First posted on the Shift.ms app
9

@EliElisa 

1 Jun 2025 18:43Last reply 1 Jun 2025 19:02

EliElisa

Travel and Holidays

Hi all, in a few weeks I’m going to go on holiday for the first time after diagnosis and recovering from a relapse. I’d like to ask what are the things to consider or that might be useful to bring ? I have done a travel insurance but I’m thinking if should ask the ms team for a certificate of the di...
First posted on the Shift.ms app
1

@taelove 

1 Jun 2025 18:42Last reply 5 Jun 2025 15:05

taelove

Kesimpta

So I went to the doctor my lession on my brain hasn't progressed so that's good but, I was concerned because I asked my doctor why haven't I been sick yet, my main worry was how often I would get sick due to it supposedly suppressing my immune system but, I have not maybe due to my other autoimmune ...
First posted on the Shift.ms app
14

@lailai93 

1 Jun 2025 14:51Last reply 2 Jun 2025 17:51

lailai93

Dmt

Do you every get days where you even forget you have ms with having your dmt?
First posted on the Shift.ms app
29

@RoseRivera1214 

1 Jun 2025 03:03Last reply 1 Jun 2025 07:24

RoseRivera1214

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

First posted on the Shift.ms app
3

@LisaB2 

31 May 2025 13:44Last reply 1 Jun 2025 20:30

LisaB2

Explaining DMT to friends and family

Hey has anyone else had problems with friends and family understanding the treatment. I’ve spent time with my friends and family explaining the treatment and truly thought they understood. I had my first full treatment of Ocrevus yesterday and a friend has texted asking when will the treatment start...
Wakefield, United Kingdom
First posted on the Shift.ms app
4
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