Shift.ms

29 Apr 2025 09:47 EditedLast reply 29 Apr 2025 12:58

Offloading - The diagnosis process and keeping up with life

Hi guys, here with my first post and just needing to get some things off my chest as I'm struggling. Background is that I am newly diagnosed but not yet on DMT. Last summer had a bout of optic neuritis, and MRI results in January showed 2 lesions. I've since had two appointments with a neurologist ...

First posted on the Shift.ms app

@missyt

29 Apr 2025 00:06Last reply 29 Apr 2025 01:09

Sick

I had to call out of work sick today, I have a fever, cough, cold symptoms. One of my coworkers texted to check up on me and I told her I'm ok, she said "just making sure it's not a bad flare up" which I know she meant well by. My response was no, just regular sick with a fever. I haven't started a...

First posted on the Shift.ms app

@fire431

28 Apr 2025 01:50Last reply 28 Apr 2025 12:16

Why and Wish!!!

Why does the Uk and other countries seem to be more proactive getting new DMTs to public than the USA. Just seems FDA is dragging their feet. Could Big Phrama preventing and making this happen to control profits?

Boonton, United States

First posted on the Shift.ms app

@steviilillian

24 Apr 2025 19:00Last reply 25 Apr 2025 15:46

DMTs

So, finally at there's been an MDT to discuss my case. Treatment options are as follows; Tysabri Ocrevus Kesimpta Mavenclad What are your wins, fails & everything in between? The research hat is on, find me reading medical journals & these comments for the foreseeable 😘

First posted on the Shift.ms app

@Lifesucks

21 Apr 2025 16:43Last reply 21 Apr 2025 23:53

Just saw sm negative… Let us change it, how long has it been without progression on your DMT

On another place someone said how quickly they were disabled after Ms. What about you guys, how long has it been that you haven’t had progression while being on a DMT! I’m starting treatment sooon, and am in desperate need of it.

First posted on the Shift.ms app

@Kirstyk

21 Apr 2025 13:44Last reply 21 Apr 2025 18:38

Eating out?

Hi all and nice to connect! I’m newly diagnosed, yet to know what dmt options there are for me and am on high dose steroids. I’m following the overcoming ms diet. I’m due to eat out for the first time in a week or so. They cook in vegetable oil (not ideal) and can’t cater without that. I’m thinki...

First posted on the Shift.ms app

@vikki18

19 Apr 2025 18:48Last reply 25 Apr 2025 07:34

Recently diagnosed

Hi, im new here. I was diagnosed beginning of March and I have my appointment with the MS nurse on 1st May. I’ve been given 4 DMT options to choose from. I think I’m going to go with Ocrevus, which I’ve read is an infusion and can be an injection. I’ve been sent the injection leaflet to read. It say...

First posted on the Shift.ms app

@Lifesucks

18 Apr 2025 15:16 EditedLast reply 19 Apr 2025 03:56

Still in the first stage of grief

I seriously am doubting having Ms even though I have lessons and a diagnosis and will be on DMT soon. I genuinely am keep excusing my very obviously Ms symptoms. I upped my Zoloft dose and my limbs went numb in seconds during night and my whole body tingled for thirty minutes, 7 months later I quit ...

First posted on the Shift.ms app

@sapphiregray

16 Apr 2025 18:22Last reply 23 Apr 2025 22:03

Has anyone else had this experience?

I went to special MS neurologists yesterday in Newcastle, living in the Lake District and MS is what I have been initially diagnosed with. Now the MS neuro has said my case isn’t just as black at white as my MRI scan shows some inflammation but I am not hitting both criteria at this point to have a ...

First posted on the Shift.ms app

@Lightning87

15 Apr 2025 19:28Last reply 15 Apr 2025 21:40

Ocrevus - your experiences

Hello! I was diagnosed in June 2018 and was on Tecfidera for 6 years before my Neuro advised I would require to come off the DMT as my lymphocytes were below 0.5 for longer than 6 months. I had to go ’cold turkey’ until my lymphocytes went back up to 0.8 which they just have, thankfully. They hav...

First posted on the Shift.ms app

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