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Diagnosis Disclosure

Do people find that hiding the condition far more exhausting than disclosing it? I’m trying my hardest to hide every symptom and avoiding certain situations without explanation.

@DominicS 

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DominicS

Disclosure- when is the right time?

I’ve had MS for 28y now and have written this opinion piece for the Barts MS Research Blog. I think it is nigh impossible to give a definitive notice answer. I do know that whenever it is you have to be (more) comfortable in your own head. That is job 1! https://multiple-sclerosis-research.org/20...

@stevedomino 

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stevedomino

Work disclosure

I've done a longer post about this - follow the link below. Finished my three days of steroids and came back to two phone message from my boss. The rest of the Management Team have been getting lots of questions from other staff members and they think it might be time for full disclosure. Thoughts?!

@shiftms-films 

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shiftms-films

Circle Of Truth | A short film about disclosing MS to your workplace

When's the right time to disclose Multiple Sclerosis at work? How do you tell your boss you have MS? And should you even have to? 🤔 Did you have a difficult disclosure experience? Share what you learned for others in the community to learn from in the comments below ⬇️ https://www.youtube.com...

@mutley64 

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mutley64

Neurologist

Hello I've been having difficulties and pain with my lower back for years . Following an XRay they found arthritis in my lower spine and osteopenia in my spine and hips. In the last few months I've been having difficulty standing on my right leg after sleeping or sitting for a while. I told my Gp ...

@DominicS 

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DominicS

Your help needed- UK MS Register

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

@Emma_Louise 

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Emma_Louise

The dating game

Hi everyone. I'm looking for advice with regards to dating and how and when you should discuss having M.S. I have been single now for about 18 months and want to get back out there ha ha. I have RRMS. Still work full time but struggle with my balance and fatigue. I was dating a guy recently and told...

@beky 

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beky

Insurance claim

Hi all, Sorry to lower the tone talking money. Just wondering if anyone has had any success appealing a refused insurance payout? They havnt said a definite no yet but have told me it will most likely be denied on the grounds of 'non disclosure' I intend to appeal but wondering if anyone has gone th...

New MS & Work Video!

Hi everyone! You might have seen that Shift have recently released new videos as part of their Work & MS. Michelle and I were part of the one below, as well as a few others you'll see as part of Series 1. I really hope you'll find them useful, particularly if you're still in the deciding sta...

@lissaxox 

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lissaxox

it's got me thinking...

I moved at the beginning of the month and I went to my local auto insurance broker to update my address on my license and the woman behind the counter asked, "Do you have any conditions that affect your ability to operate a motor vehicle?" Without thinking I said no, up until this point I had been e...