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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Recent activityNewest posts

@Forever35 

14 Jul 2025 20:53Last reply 16 Jul 2025 13:23

Forever35

Fatigue : Hello everyone! I’m struggling with A lot of fatigue. I’ll get up in the morning have my coffee and bowl cereal, and about 1/2 hour or so I feel so tired my eyelids feel like they’re so heavy that I end up taking a nap! Does anyone have this too and/or any tips?

First posted on the Shift.ms app
20

@Laura_Borg 

10 Jul 2025 22:42Last reply 11 Jul 2025 13:32

Laura_Borg

I was diagnosed when I was 27 and was fine till I had a really stressful time , losing my mum and dad and a baby at 34 weeks , that was 5 years ago and just can’t seem to get back to where I was , I trip over constantly resulting in many falls the last one ended up in busting my hand up and breaking my engagement ring , I know it’s only a ring but just feel like I’m falling apart, also bad coughing fits for no reason where I actually thought I was going to pass out !

First posted on the Shift.ms app
5

@SmileyDrag0n 

16 Apr 2025 16:07Last reply 8 Jul 2025 10:05

SmileyDrag0n

Has anyone had similar symptoms to MS but ended up being diagnosed with something else? If so what were you diagnosed with?

I recently had 4 MRIs due to being under suspicion of having MS but they all came clean. I'm glad it's not MS but I'm frustrated because it means I'm at square one again. Has anyone else had a similar experience?
First posted on the Shift.ms app
4

@Fabii12 

25 Jun 2025 07:37Last reply 28 Jun 2025 08:07

Fabii12

Never ending uncomfortableness

I can’t think of when I felt no symptoms at all. Everyday there’s something pain, cognitive issues, nausea, pain AGAIN but is this what the rest of my life will be like
First posted on the Shift.ms app
4

@NadiaAng 

7 Mar 2025 07:02 EditedLast reply 19 Jun 2025 16:11

NadiaAng

Anyone interested for brunch or lunch at the end of March in London??

First posted on the Shift.ms app
3

@MarcBerg828 

11 Jun 2025 00:55Last reply 11 Jun 2025 12:18

MarcBerg828

Hello. So just got diagnosed with MS after a 2 week stay in the hospital at the end of April. And the last 2 weeks on both arms in my elbow area at pretty numb to the touch and my left arm hurts when I try and pick something up. Not sure if it's related or not. Have to set up a appointment with neurology after I get a referral from my PCP which I'm getting on Thursday afternoon!!!

First posted on the Shift.ms app
4

@cooksey32 

31 May 2025 02:52Last reply 31 May 2025 10:26

cooksey32

Hi all. I’m new to this app. I’m 26 years old and have been diagnosed since the age of 18. My MS nurse has said I have one of the most aggressive cases she’s ever seen, which doesn’t bother me personally, I live life as “it is what it is” what I’m wondering is does anyone have plans for future life when it gets worse? For me my plan is when I feel I can’t live a good quality of life I will happily just end my life. I hope it doesn’t get to that point but I am prepared for it. What’s everyone else’s plans? .

Middlesbrough, United Kingdom
First posted on the Shift.ms app
10

@Carlos 

12 May 2025 11:55Last reply 12 May 2025 12:26

Carlos

Hi I have rrms but latley I seem to be having more episides than usual , I am pretty used with tingling down one leg and regular pain in my sides which I believe is somthing called the ms hug which is reall annoying, but latley I have been experiencing servere pain in my lower jaw and teeth which happen when I touch a certain part of my bottom lip, even licking my lip can set it of, a few days ago it got scary when I was unable to talk due to the pain when simply trying to speak, I am currently on copaxone, this is the first time I have spoke about my ms on a forum apart from speaking to my long suffering partner ( who has to endure my whinging ) I just would like to know if anyone else has this sort of pain and any advice on how to deal with it . Thanks David

First posted on the Shift.ms app
3

@prettysunsetsky 

7 Mar 2025 17:23 EditedLast reply 9 May 2025 13:18

prettysunsetsky

Hi, my name is Grace I am 19yrs old, Born and Raised in Philly. I never really knew much about MS though I do have 2 family members who have it. I have been experiencing numbness, tingling, sciatica, fatigue, double vision, itching and tingling sensation in my skin, tremors, weakness in my arms and legs, balance issues, etc… I went to see my Primary and she said it could be MS, though I do have some other things going on. She ordered a MRI for me but they didn’t really find anything. I went to see a Neurologist and he looked over my scans and suggested I get a another MRI just to be sure and this time lthey are looking at the whole spine. I sometimes I feel like I may not be taken seriously because of my age. But hopefully I can figure out what’s going on with me because this whole process has been tiring and frustrating. But the MRI is at the end of the month so I guess we’ll see.

First posted on the Shift.ms app
12

@Katie_Harrison 

14 Nov 2022 16:47Last reply 3 May 2025 03:51

Katie_Harrison

Just Started Copaxone - When Will The Stinging End?

I had my first injection of Copaxone on Friday morning and I was unprepared for the stinging that followed which lasted over an hour. I had my second one today and again the stinging was unbearable. Has anyone been on Copaxone injections? Did you have this experience? If so, how did you combat it?...
  • Copaxone
  • Treatment
  • Plegridy
  • Extavia
  • Betaferon
  • Rebif
  • Avonex
  • Symptoms
11
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