It has just occurred to me that you would never know if a DMT has changed your disease course ?? How could you ever know as we’re all different and experience different symptoms ? How could a neurologist /doctor advise which one might suit
So tomorrow I take me 3rd round of tysabri. I’m wiped out today. I could sleep all day today. My last flare up before starting tysabri I had the majority of it in my eyes so my vision (which used to be 20/20) has gotten way worse. My question for everyone is will things improve with these ifusions? ...
Hi everyone,
I just need some advice. Recently, my MS symptoms have gotten worse, and I find I'm suffering more and more each day. I have seen my MS nurse today, who is now considering putting me on DMT treatment. What experiences have people had with the DMT, and which one has worked best for pe...
Hello,
Me again 🙋🏻♀️😬 I’m still stuck on what DMT to take. I’m deciding between Mavenclad & Copaxone. I really like the ease of Mavenclad, it’s a pill & the fact it’s a higher efficacy but I can’t work out if there is a less common side effect of PML with Mavenclad? & I’m sure I read the ‘cance...
Hi everyone, I have RRMS and I am currently on Tysabri since my diagnosis in April 2020 but I need to come off it due to PML risk, Dr suggests Ocrevus, just wondering about people’s experience as I have done so well on Tysabri, hope everyone is surviving the heat!
Hello everyone.
I was recently diagnosed with MS (July 2023) and given two options - Kesimpta or Ocverus. I instantly thought Ocverus would be the best fit because it happened once every 6 months. But my MS nurse is pushing Kesimpta. I was never asked , it was assumed in my MS call that I wou...
Hi all !
I had an episode of optic neuritis 8 yrs ago,had an MRI done and there was some lesions. Ar the time me and my neurologist decided to wait and see what happens rather than starting any treatment. I wasnt happy with how all treatments work and rhe side effects scared me a lot. This year ho...
I recently had an appointment with my MS nurse about my DMT options. They have offered me a choice between mavenclad, ocrevus, tysabri and kesimpta. I’m not too sure what to pick as i’m still in my second year of uni and i’m quite busy. Any advice? Thankyou ◡̈
I’m at the point where I’m being offered DMTs. When I ask the nurse “what would happen if I don’t take them”. She’s says no one can answer that because everyone is different. I’m thinking there surely must be some data, which shows the risk of decline without them? Or else how would they know that t...
So this year I was diagnosed with RRMS. Took 11 months to get diagnosed.
I have opted put of any official treatment as I didn't feel comfortable with any of the options. My doctors think im crazy of course but at this point I'm good with my decision.
Just curious if there are others who have opted o...