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Found 2571 results

@Shillam81

EditedLast reply

Shillam81

DMT

Hi everyone, I just need some advice. Recently, my MS symptoms have gotten worse, and I find I'm suffering more and more each day. I have seen my MS nurse today, who is now considering putting me on DMT treatment. What experiences have people had with the DMT, and which one has worked best for pe...
  • Treatment
  • Which DMT
  • Symptoms
  • Work and play
  • Diagnosis
8

@LEAllen

Last reply

LEAllen

DMT

Hello, Me again 🙋🏻‍♀️😬 I’m still stuck on what DMT to take. I’m deciding between Mavenclad & Copaxone. I really like the ease of Mavenclad, it’s a pill & the fact it’s a higher efficacy but I can’t work out if there is a less common side effect of PML with Mavenclad? & I’m sure I read the ‘cance...
Swindon, England, United Kingdom
  • Treatment
  • Copaxone
  • Mavenclad
  • Which DMT
  • Work and play
  • Rebif
  • Newly diagnosed
  • Plegridy
3

@Evelyn

Last reply

Evelyn

DMT

Hi everyone, I have RRMS and I am currently on Tysabri since my diagnosis in April 2020 but I need to come off it due to PML risk, Dr suggests Ocrevus, just wondering about people’s experience as I have done so well on Tysabri, hope everyone is surviving the heat!
  • Diagnosis
  • Treatment
  • Relapsing remitting
  • Ocrevus
  • Tysabri
  • Which DMT
  • Hot and cold
  • Symptoms
4

@Gabriellab

Gabriellab

DMT ofatumumab

Hi everyone. Just about to start my treatment ofatumumab and i was wondering if anyone could share there experiences. Thankyou
  • Treatment
  • Which DMT

@Belledefluff

Last reply

Belledefluff

DMT's and new symptoms

Hey 👋 Just wondering if anyone has experienced a decline in mobility and/or speech after starting DMT's and whether it was a symptom you had before or not? I'm in a local MS Facebook group and a number of people have posted about this and it sounds as if the DMT has made them worse physically but...
  • Which DMT
  • Symptoms
  • Treatment
  • MRI
  • Diagnosis
  • Balance
1

@xyleth

Last reply

xyleth

Expectations of DMT

Curious about what to expect in terms of outcomes, not side effects. I get that the purpose of a DMT is to slow / hal the progression of MS and hopefully prevent any future relapses and further damage. What I can't see any info on, which maybe answers the question in itself, is the impact of DMTs ...
  • Symptoms
  • Which DMT
  • Treatment
  • Brain fog
  • Fatigue
  • Relapses
  • Hot and cold
4

@Chelsie

Chelsie

Switching DMTs

Hi everyone! Quick question, has anyone switched from Tecfidera to Ocrevus? If so, how long before getting your Ocrevus infusion did you stop taking Tecfidera?
Saskatchewan, Canada
  • Treatment
  • Ocrevus
  • Tecfidera
  • Which DMT

@Dottie7

Dottie7

How long does it take to start a DMT?

Hi. Just after an idea of how long it takes from a diagnosis to starting a DMT?
  • Which DMT
  • Treatment
  • Diagnosis

@ChiMum

Last reply

ChiMum

Not sure on which DMT to choose & feeling overwhelmed

I signed up for the StarMS Trial yesterday, but I also have to choose a DMT in case I don't get the stem cell transplant (or don't get on the trial based on my test results). I am trying to decide between the 6 monthly infusion(ocrelizumab) or the monthly injection (Kesimpta/ofatumumab) I am leani...
Sheffield, UK
  • Which DMT
  • Treatment
  • Newly diagnosed
  • Diagnosis
  • Betaferon
  • Avonex
  • Research
  • Work and play
  • Extavia
  • Symptoms
7

@Alya

Last reply

Alya

DMT Advice?

Hey everyone, could you help me with advice, please? It’s a hard choice…neurologist offered two options Ponvory or Gilenya. I’m terrified with side effects… does anyone use any of those? If yes, what was your experience like?
  • Treatment
  • Which DMT
  • Gilenya
  • Symptoms
  • Work and play
  • Diagnosis
40

@TaraO

TaraO

Herbal Remedies - non DMT route

Has anyone tried any herbal remedies to manage MS rather than going down the DMT route? If so, how successful has it been?
  • Which DMT
  • Treatment

@dkon

EditedLast reply

dkon

Choosing DMT - high efficacy early on?

Has anyone here started straight with high-efficacy treatment (ocrevus, kesimpta or Tysabri) while not yet having accrued any disability and only few lesions in the brain? I am reading quite a few opinions and studies indicating it might be better to hit MS hard and early. In my case (36F) I have 3 ...
  • Treatment
  • Diagnosis
  • Ocrevus
  • Which DMT
  • Work and play
  • Fun drugs
  • Relapsing remitting
  • Tecfidera
  • MRI
  • Blurred vision
16

@Angi

Last reply

Angi

No DMT

I have an irrational fear of meditation. Im not on anything except the two things I was put on when I ended up hospitalized. Just Valium and gabapentin to help manage spasticity. I need help!!! I know I should be on a DMT but just writing this gives me severe anxiety.
  • Which DMT
  • Treatment
  • Mental health
  • Symptoms
  • Mind and body
  • Healthy living
6

@05Kubann

Last reply

05Kubann

DMT switch

Just looking for some advice. Switching from tysabri to Ocrevus and was wondering anyone who switched, did you have a relapse if the switch happened quick? I’m so worried and I’m dreading the summer ☹️
  • Symptoms
  • Treatment
  • Relapses
  • Ocrevus
  • Which DMT
  • Hot and cold
1

@Ken1975

Last reply

Ken1975

Silent activity (DMT advice)

After recently having my yearly MRI scan, today I saw my neurologist. I’ve had stable scan results the last 5 years but today there was a new lesion picked up. He gave me three options going forward.. 1 Tecfidera tablets 2 Brabio injection 3 Extavia injection As I’ve never taken DMTs and only been ...
  • Treatment
  • Which DMT
  • MRI
  • Tecfidera
  • Diagnosis
  • Vitamins and supplements
  • Copaxone
  • Newly diagnosed
1

@lydia2284

Last reply

lydia2284

DMT question

Hi All, I was just wondering how long DMTs work for? Is it that we change every x amount of years until none of them no longer work? Or can we expect to be on a DMT that’s working for life?
  • Which DMT
  • Treatment
  • Work and play
  • Work and Study
2

@chloe_tea

Last reply

chloe_tea

Which DMT - Newly diagnosed

Hi ! Just looking for a bit of advice or opinions on which DMT would be best or people's experience with them, and just to have a bit of a rant I suppose. I'm 29, just been diagnosed with highly active relapsing remitting MS, likely had MS for about 6 years. I've been offered Cladribine, Ocrevus, Ke...
Hamilton, United Kingdom
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Which DMT
  • Relapsing remitting
  • Symptoms
  • Spasticity
  • Mental health
  • Ocrevus
  • Fatigue
11

@dipetar

Last reply

dipetar

Not on DMT, no relapses, left leg fades

Any advice? Generally I have relapses - one every three years, and I am not on DMT. This year, my left leg slowly fades away. Stairs, walking for a longer period now becomes a challenge.
  • Which DMT
  • Treatment
  • Exercise
  • Healthy living
  • Relapses
  • Symptoms
  • Diagnosis
  • Work and play
2

@CountryGirl

Last reply

CountryGirl

DMT conundrum

Just met with my MS nurse for the first time (diagnosed Oct 22). I need to decide on what type of DMT I want... Injectibles or Infusion? Thought I'd ask you all what your experiences have been like?
  • Which DMT
  • Newly diagnosed
  • Treatment
  • Diagnosis
  • Ocrevus
  • Relapsing remitting
11

@emosh

Last reply

emosh

Isolation when starting new DMT?

Hello all, After far too long, starting back on DMT (kesimpta!) and I'm wondering how much people isolated (or not) on b-cell depletion meds? We're going into the holiday season and there's a lot of potential for socialising, but part of the delay in getting back on DMT is that my lymphocytes took...
  • Which DMT
  • Treatment
  • Travel
  • Work and play
  • Tecfidera
  • Relapses
8
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