Shift.ms

24 May 2025 05:58Last reply 24 May 2025 15:56

Seizure or passing out with fatigue?

Hey, first post. I'm just curious as to whether anyone has experienced anything similar to me? I've been suffering with symptoms since December 2023 but only got the MS diagnosis 29 April 2025 (long wait times on the NHS). My symptoms haven't been too concerning until recently. I was lying in bed (f...

First posted on the Shift.ms app

@Helen_Hunt

23 May 2025 13:33

Opting out of DMT

Anyone else got DMT fatigue? I have been on 5 different ones over 20 years, I had to come off ocrevus due to some side effects, and getting an MRI on Sunday so they can get an idea of what to do next. I'm just a bit done with all the hospital visits, tests, side effects etc I am seriously thinking a...

First posted on the Shift.ms app

@JoLou50

21 May 2025 13:43Last reply 22 May 2025 11:18

Ocrevus and Crohns

Been on O for 3 years with 0 issues. Now recently diagnosed with Crohns - believed to be as a result of that medication. Can no longer have O - and back to choosing a new DMT. Mavenclad Tecifidara Ponvory Gilenya What a minefield! Any suggestions or recommendations?

Northampton, United Kingdom

@tash221993

17 May 2025 23:22Last reply 19 May 2025 18:25

MRI - annual MRI

Hi everyone! I live in West Yorkshire in England, and the nurse I will be transferring to says I won’t have an annual MRI - one of the reasons is that she has 700 people in the district and she is on her own. I’m a little confused as I thought people who were newly diagnosed with MS (diagnosed D...

First posted on the Shift.ms app

@ricardo2646

14 May 2025 16:32Last reply 15 May 2025 03:03

Mayzent

Hi all hope your all doing ok, is anyone out there using Mayzent as their DMT if so what’s it like? Is there any side effects from it? Is it effective etc many thanks 🙏

First posted on the Shift.ms app

@tash221993

12 May 2025 19:10Last reply 15 May 2025 19:04

Hi everyone! I have been recently diagnosed with RRMS. My nurse has advised that I start a DMT - either Avonex or Plegridy. Is anybody on these or does anybody have any advice on which one I should go for? Thank you in advance

First posted on the Shift.ms app

@jeffco

11 May 2025 14:00

Ayahuasca

Hello everyone! I've been dealing with MS for a few years now. I'm on a DMT(disease modifying therapy).. clinical trial. I've wanted to go try an Ayahuasca ceremony, to help with chronic depression. I've heard so many amazing stories of people conquering the terrible aftermath of different trauma...

First posted on the Shift.ms app

@sbodamer

10 May 2025 17:57Last reply 11 May 2025 23:57

DMT and aging

Good morning all. I was diagnosed a very long time ago... so long ago that there were no DMTs available. When they did come out my doctor felt that because I was stable I didn't need to take anything. Fast forward several years and I was given Rebif which I stayed on for many years. I switched doct...

First posted on the Shift.ms app

@DMcIvor74

10 May 2025 14:36Last reply 10 May 2025 19:46

Infusions or injections

Do you have your DMT via a cannula or injection?

First posted on the Shift.ms app

@Peej

9 May 2025 18:14Last reply 11 May 2025 18:30

I'm envious

Of people who don't experience many symptoms and still managed to get diagnosed, I presented with so many symptoms for 8+ years and only got diagnosed because I had to plead for my life after being told constantly it's all in my head and because I'm fat, and if I hadn't begged for that second opinio...

First posted on the Shift.ms app

Shift.ms is better if you're logged in

Topics