Sooooo.... im finally starting my DMT next week. Any tips or advice before I start natalizumab subcut?
Both anxious & weirdly excited so any words of wisdom welcomed! 😘
My first post, so let me introduce myself, in case it helps someone who’s closer to the beginning of this difficult journey.
I’ve had RRMS for over 20 years and been on DMTs for around 15. I’m still walking and working, but get tired easily, and I still drive, just with a blue badge in the car. So,...
I am now the happy owner of a BRIGHT SHINY left sided optic neuritis episode, confirmed by MRI. 💥🎉
Thankfully, I can now move up to more effective DMTs. I have the choice of Ocrevus(6 monthly infusions), Kesimpta(monthly injections at home) or Tysabri (monthly infusions).
I'm looking for honest...
I’ve got my first appt tomorrow with the MS nurse, I’ve read up on DMTs and pretty much made my decision. I’m happy to hear what my neurologist recommends based on his meeting with the MS MDT
I’ve got a list of questions and a list of symptoms but my main question is - when can I start treatment! ...
When I was diagnosed with MS the only option I was given for DMT was Tecfidera, my last MRI was stable but I only had an MRI on brain & neck & not spine in the last 6 months I’ve starting to have back pain & weakness & my walking has got worse, I’m just wondering why I wasn’t given any options?
Has anyone improved from taking DMTS ? I tried 4 or 5 over the years and all of them have made me worse. They now want to put me on an infusion every 6 months, but it kills my white blood cells!! Surely only going to make me relapse more