@Nold 

Last reply

Nold

A little bit of panic....

Hi everyone. I'm feeling totally crappy at the moment. Not just that i have bad cold, the problem is the emotional side. Just have to speak about it. A the moment I don't have anyone who can listen and understand what I am saying. I always thought I was healthy. Just a little bit overweight, but i did sports regularly. But there where some disturbing little things that bugged me. Nothing big, weird feelings in the stomach, some tingling, concentration problems etc. I always thought its from a poor diet and too much stress. This year I decided to do something about this stuff. The result was that my gall bladder was removed, and I was diagnosed with asthma, gilberts syndrome, diaphragmatic hernia and ms all at once. Doctors diagnosed RRMS, but I still think of some progressive form, just because I never had a relapse or remission and every symptom I have came slow and over time. I think they haven't decided for progressive because they still wait to see a year of progression without relapses. When I was diagnosed in April, I had mostly sensual and cognitive problems (Tingling, lhermitte, brain fog etc) and I was quite optimistic. I started to adjust to the new situation. Making financial plans, I was looking for a new flat (actually i live on the 4th floor without elevator and the stairs are not getting easier)and things like this. But in the six months since diagnosis things seem to get worse too fast. since September I have spasticity in my legs, an a few weeks ago my arms started twitching and moving around also. All limbs grow heavier each week. My concentration is completely wrecked up, so I have to fear about my job as software developer. When cognitive problems get worse, I won't be able to do this job much longer. I mean... seriously... so many diagnoses in such a short time. MS seems to get worse so fast. Most other MSers I talk to report from problems whith their legs or their hands. I have problems everywhere.. legs, arms, head, cognition, tingling on the whole body, fatigue. Even the uncommon symptoms like constant ringing in the head and other stuff. It's just changing too fast to adjust to it. At the moment it's virtually impossible for me to stay positive. I just can't get rid of the thought of losing control over legs and arms and head and being completely helpless in the course of a few years. In addition, after being in relationships since I was 17 and even being married for years, I managed to get all this crappy stuff after the divorce. So I have to face this completely alone which scares me even more. At the moment I just don't know what to make out of this. Thank you for listening. I just had to get it out :(
@Stumbler

Hi @Nold , I should imagine that you feel just a little better from writing all that down. But, you have been through it a bit with your recent history. Anyway, the diagnosis of MS is very much down to test results (MRI, Visual Evoked Potentials & Lumber Puncture), present symptoms (plus nerve conduction and reflex tests) and your clinical history. Now, the clinical history would include any potential related episodes, symptoms and duration. And, this is where the problem lies with the actual diagnosis of a progressive or relapsing/remitting variant. A Neurologist doesn't like to guess a specific diagnosis and needs to build up their own picture. Having said that, MS is a progressive condition, even when it's diagnosed as Relapsing/Remitting! The best way forward for us is to try and work with the Neuro and, additionally, try to manage ourselves in the optimal way. So, adopt a healthy lifestyle, i.e. a healthy balanced diet and avoiding extremes of under or over-doing it. It is also important to try and banish worry/stress from your life. These negative emotions can invoke MS activity. And, with your recent problems, it would seem likely that you've been over-dosing on stress. Things may look bad to you today, but tomorrow could well be better. Stay positive.

@cmlawrenson

Hi there, I have never wrote on the site so here goes! I have had ms for 2 years and been on Avonex for a year which makes me feel terrible every time I take it but ha if it slows it down I will keep feeling bad. I get the whole body pain but thought it was just me moaning until I just read your post.I feel so much like you I think right now. I have got this pain in my tummy that is like a massive knot getting tighter and my back and shoulders ar so tense.Im going off my food. Not sure if its stress, constipation, ms or something else so need to say im worried. My legs twitch all the time and my hand has pins and needles in it. As for my head I really dont feel all the ticket feel a bit of a fruit cake to be fair!! Ms just seams to be one thing after another. I spoke to another lady the other day and she described it as a list of shit cause there is so many symptoms. I just keep trying to tell myself there are people out there far worse than I ever am. Really hope you feel better soon