Shift.ms

18 Jun 2025 22:16 EditedLast reply 19 Jun 2025 14:14

Scared of disease progression even with DMT (long read)

I’m relatively new to this whole MS thing having gotten recently diagnosed and I haven’t had enough time to process this given that I’ve been distracting myself with work so much. To my detriment at times. My diagnosis has been a bit weird and quite dramatic but I’ll just vent here and hopefully s...

First posted on the Shift.ms app

@JDH34567

12 Jun 2025 20:04Last reply 13 Jun 2025 14:21

Quick energy boost which isn't caffeine/coffee

Hi everyone, I'm new to this forum and I've posted this in a different ms forum before about this but I'm still trying out new things to help my MS with this. Luckily for me atm my MS is well managed and I don't need any further aids/adjustments so I'm fairly active but I was wondering if anyone's f...

Liverpool, UK

Unpublished

@Michellejohn35

2 Jun 2025 18:17

ecently had my MRI results and (as I kinda suspected after a rough few months) had new lesions.I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard few months I've really isolated myself from people (some I'm unsure even how to reach out to again now) and live alone alone some of the time when my four children are at their mum's. Positive news is, they've mentioned Ocrevus and Kesimpta, which are obviously higher efficacy treatments. Could I ask for any advice people have around these DMTs, please? If you've seen me ask on Facebook or Instagram, then feel free to ignore and not repeat yourself.

First posted on the Shift.ms app

@MK24

2 Jun 2025 17:22Last reply 4 Jun 2025 11:34

Ocrevus or Kesimpta

I recently had my MRI results and (as I kinda suspected after a rough few months) had new lesions. I'm currently on Plegridy (moved from Tecfidera as I'm JCV positive and my lymphocytes lowered a lot). Tecfidera worked ok for me, but Plegridy obviously hasn't been as effective. Due to the hard fe...

, United Kingdom

First posted on the Shift.ms app

@tash221993

12 May 2025 19:10Last reply 15 May 2025 19:04

Hi everyone! I have been recently diagnosed with RRMS. My nurse has advised that I start a DMT - either Avonex or Plegridy. Is anybody on these or does anybody have any advice on which one I should go for? Thank you in advance

First posted on the Shift.ms app

@sbodamer

10 May 2025 17:57Last reply 11 May 2025 23:57

DMT and aging

Good morning all. I was diagnosed a very long time ago... so long ago that there were no DMTs available. When they did come out my doctor felt that because I was stable I didn't need to take anything. Fast forward several years and I was given Rebif which I stayed on for many years. I switched doct...

First posted on the Shift.ms app

@Peej

9 May 2025 18:14Last reply 11 May 2025 18:30

I'm envious

Of people who don't experience many symptoms and still managed to get diagnosed, I presented with so many symptoms for 8+ years and only got diagnosed because I had to plead for my life after being told constantly it's all in my head and because I'm fat, and if I hadn't begged for that second opinio...

First posted on the Shift.ms app

@youngatheart

8 May 2025 19:38Last reply 9 May 2025 17:46

Cough / Ocrevus

I started Ocrevus 5 weeks ago, got a minor cold after which only lasted a few days. Cold went but a few days later started a non chesty but persistent cough that's beginning to burn. The NHS guidelines on coughs seem to be wait a few weeks, would you bother your GP with this as it's only been around...

First posted on the Shift.ms app

@LauraJack

3 May 2025 16:19Last reply 3 May 2025 20:16

DMT thought...?

This might sound like a stupid question, but its something that has only just come into mind... Do DMTs only help stop relapses of different symptoms, which you havent yet experienced? or do they also help stop the ones you have experienced from recurring?

London, United Kingdom

@missyt

29 Apr 2025 00:06Last reply 29 Apr 2025 01:09

Sick

I had to call out of work sick today, I have a fever, cough, cold symptoms. One of my coworkers texted to check up on me and I told her I'm ok, she said "just making sure it's not a bad flare up" which I know she meant well by. My response was no, just regular sick with a fever. I haven't started a...

First posted on the Shift.ms app

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