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Hi. Hope your great where ever you are in your journey with MS. I have a question for all those on Tysabri infusions or have used it. I have been on the infusions for last couple yrs and I have been having relapses that have been ignored. Now a mri has shown new changes and they have offered me HSCT...

I decided to use ChatGPT and asked it to give me an explanation of MS, what’s happening, why and what my DMT medication (Kesimpta) is doing and why. I honestly found this brief exchange the most clear explanation and summary of MS to me. It’s helped me understand a lot more. Here’s the exchange, b...

I had my son in February and I was told during my pregnancy that I was high risk of relapsing in the first 3 months Post partum. Ofcourse my body decided to have that relapse in the April. I was on steroids and finished the, then had to have an MRI. Unfortunately my MS was still active after the ste...

Heya, I was wondering if anything be else had been diagnosed with MS and just felt alright? I've had a few relapses but, touch wood, nothing to write home about. I see an awful lot of people here that seem to be having such a rubbish time with everything, and I feel for them, it's just that, I don't...

Today is Friday the 13th and it's time to receive my 5th Rituxan infusion treatment. I'm a little nervous about this one this time because I'm very superstitious. Here's hoping that I don't get sick again afterwards, last thing I need is another year long coughing streak. Wish me luck for this day t...

On Friday, 20 September, hundreds of people with MS and related neurological conditions will join this year’s ECTRIMS Patient Community Day online. theMSguide.com is supporting this event, which is a great opportunity to make new contacts and learn more about the latest advances in MS treatment th...

Hello again, So since its the back to school season, & I meet lots of parents & kids, Ive just got a viral respiratory infection, a rough cough with mucus, flu & some fever. The dr said that the Tysabri im taking suppresses my immunity, so whatever disease I get, I need to take extra medicine, & ex...

We look forward to your post on the topic For all of you interested: watch out for news of TOLEBRUTINIB and FENEBRUTINIB, for us progressive MSers, in the upcoming Euopean Congress of MS in Copenhagen, Denmark (ECTRIMS). Currently in phase III (the last before filing to EMA or FDA), the drugs coul...

After reading so many stories of people having to wait so long for a diagnosis, I feel that I must have been very lucky. As I was taken to hospital with a suspected stroke on the 7th of August and diagnosed with RRMS 10th of September. Although I have many old lesions on the MRI results I must have...

My ms nurse just phoned me- I’m having my infusion next month then I’m having my injection next year. It will be in the tummy before take antihistamines, Paracetamol and a steroid tablet. It will take 10 minutes probably have to wait view minutes to see how you are. Never had a infection in my tumm...