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@Peej 

Last reply

Peej

I'm envious

Of people who don't experience many symptoms and still managed to get diagnosed, I presented with so many symptoms for 8+ years and only got diagnosed because I had to plead for my life after being told constantly it's all in my head and because I'm fat, and if I hadn't begged for that second opinion I still wouldn't be diagnosed today. That wait caused so so much irreparable damage and now I'm still suffering without any kind of longterm working usefull support /treatment plan in place other than dmt. Which makes me feel worse and also im prone to catching something while in the dmt appointment ( literally always come away with an illness) bc no fucker wears a mask anymore
First posted on the Shift.ms app
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@avic
@avic
 

I'm sorry you have had to go through that. I was told things like it is just stress from work, or a viral thing and that my symptoms were hard to objectivise because they are mostly sensory (yeah that's kind of what MS is no?) I am lucky as I am a nurse so had some connections to help the process but it still felt like an uphill battle at times. Healthcare can be such a lottery at times, sometimes it is luck, sometimes you have to fight.

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@Peej
@Peej
 

@avic to this day they don't think I suffered those 8 years and only recognise from when there was a sudden onset episode of numbness along half of my body, erasing basically 5 year of hellish vertigo, pains and other neurological and sensory symptoms for no apparent reason other than trying to retroactively cover their asses. I don't have anyone to advocate for me and if I bring scientifically backed data to advocate for myself they wave me off as Googleing too much (trying to use the excuses hysteria and hypocondria without using the words)so I really don't know what to do, I would love to change hospitals but there's only 1 in my town and I cannot travel far (obviously) I don't have anyone who would drive me out of town, and I certainly cannot move in my condition especially when the only people I know (even though they rarely help me perhaps once a year to help me clean which I actually need like once a week) all live here 🙃 it's infuriating, I'm being set up to fail time and time again. My life's been shit from the start, I can't give you one solid block of time where there wasn't something traumatic happening to me

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