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@Jpetridish 

EditedLast reply

Jpetridish

Hello, so I have a question or just want anyone’s opinion or help if possible please. I first had optic neuritis in 2021, was put on steroids and eventually got better but did leave some perminent damage. I had my first baby in 2023 and after I started to slow down breast feeding I started to get some interesting symptoms. Every morning my hands would be extremely itchy not like dry skin, but from the inside it was driving me insane it was every day and then I started getting random pain either on the top of my head like a bad bruise or on my back which I even thought was shingles, cause it was so painful to the lightest touch, but there was nothing there I even went to the doctor and in about a week that pain subsided The hand itching and the pain on my head continued though. In January I had noticed signs of optic neuritis happening again, but in my other eye, I went to the doctors right away and they had sent me to the emergency room. I was put on Iv steroids and got an MRI I was there for about four days. They saw some white matter lesions in my brain, but it wasn’t clear because of movement. They then did a spinal tap which came out clear. I had gone home and had to follow up with a neurologist about a week after I got home? I had horrible symptoms I was holding my child and my knees gave out my hands were hurting. I was twitching all the time I could not sit still it was worse when I was laying down at night my body just would not stop moving and at some point I could not feel my foot I felt like it was in an ice bucket. I was extremely tired, and I would get random goosebumps in blotches on my arms for no apparent reason I started getting some bad headaches too I then woke up one morning and I could not lift my left arm. It was like it was asleep. I would get pins and needles and different parts of my body also but the muscle weakness in my left arm was horrible. I could barely hold anything. It is still like this to this day, but not as bad if anybody came up and touched me without me, knowing my whole body would spaz out almost like my reflexes were on high drive I have seen three different neurologist since the first neurologist is convinced I have MS the other two which I actually liked better and our MS specialists keep saying I may have it. They did a repeat of my MRIs and again had some white manner lesions in my brain, but they were identical and not in the usual spots where MS lesions would be so they am holding off on fully diagnosing me and want to wait and repeat and see if there are new lesions in the following months. I have not been able to work since since I have a physical job I have good days and bad days if I get sunburn the very next day my hands feel like they’re in a vice. The pain is horrible. I want to know what everyone thinks do I have MS are they just trying to cover their butts and wait or what

First posted on the Shift.ms app
9

@Fozz 

Last reply

Fozz

Unlucky? I need a rant.

So, I got got medically discharged from the army for a spinal injury 2 years ago which still causes me pain daily... I then got diagnosed with MS... Obviously caused depression... Optic neuritis kicked in and now have permanent damage to my right eye. And I get a phone call this morning from the der...
Leicester, United Kingdom
10

@Lindushka 

EditedLast reply

Lindushka

Thoughts of being newly diagnosed

Hi everyone, I'm new here, got diagnosed about 2 months ago after optic neuritis and 4 months of waiting for the results. I feel relieved to have the diagnosis but also feel like I'm "fake" and "guilty" seeing as my only symptom is my eye problem. Has anyone had similar experiences/feelings after th...
First posted on the Shift.ms app
16

@MarieDate 

Last reply

MarieDate

Vision and Heat

So all my regular symptoms always worsen in the heat. Heavy legs. Headaches. Fatigue. This year I'm noticing that my vision is also suffering. More blurred vision if it's hot weather. My optic neuritis seems to stay the same but my overall vision is worse on hotter days. Anyone else experience this...
First posted on the Shift.ms app
18

@AWAYWITHMS 

EditedLast reply

AWAYWITHMS

Anniversary

Approaching my first symptom anniversary date at the end of this month. I spent 5 years in NC before moving to Georgia for 1 yr. Optic neuritis took my left eye out the game, I was forced to move from my new place in a new state (GA) being that I lost my vision and didn’t know what was going on wi...
High Point, United States
First posted on the Shift.ms app
4

@Lauren21 

EditedLast reply

Lauren21

DMT decision - Ocrevus, Kesimpta, Tysabri...ooh my!!!

*Update - my JC virus came back positive. Although very low, Tysabri wouldn't be recommended so it looks like my decision is a little easier. Kesimpta or Ocrevus 🙈 I am now the happy owner of a BRIGHT SHINY left sided optic neuritis episode, confirmed by MRI. 💥🎉 Thankfully, I can now move up to...
43

@lkr6 

Last reply

lkr6

Optic neuritis

Hello, looking for some words of wisdom, am fairly recently diagnosed (March this year) luckily symptoms have been fairly manageable so far. However Thursday morning I woke up without much sight in my right eye, trip to eye casualty later and diagnosis of optic neuritis. They’ve said it will heal it...
First posted on the Shift.ms app
19

@dcgreen714 

EditedLast reply

dcgreen714

Hello

Hi everyone, I’m new here 👋 I was diagnosed in December 2024, my first symptom was numbness in my legs back in 2021-22, then optic neuritis in 2023 had landed me in the hospital and so began my MS journey. During that time I was just a few wks shy of moving from upstate NY to the UK for school - it...
First posted on the Shift.ms app
8

@NadineBeck 

Last reply

NadineBeck

Is this optic neuritis?

I don't know if I'm over reacting/panicking, but Tuesday i had a grumbling headache, that twice gave me sharp pain to the right side of my head, grumbling very mild headache since. Yesterday I felt like there was 'jelly' in my right eye making sight a little off, but not awful, resolving after a f...
First posted on the Shift.ms app
13

@CasaBlanca 

Last reply

CasaBlanca

Relapse, maybe?

Hi everyone, looking for advice and experiences. On Monday, I did my first workout after not being active for about 4 years. I had normal muscle soreness after, nothing unusual. On Wednesday, I started sweating a lot and had pain in my right eye. I have had optic neuritis in that eye before. I als...
First posted on the Shift.ms app
2
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