#numbne - Shift.ms

@Tekin

Hello My earliest symptoms were numbness on my right pinky toe tip. It has been 6 years now. I am now experiencing similar on my right hand ring finger tip. Is there anyone here had similar progress.

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@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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@Johnbradley

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Are these symptoms (fatigue, numbness, tingling, vision changes, pain, brain fog) related to MS?

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@Newtotheteam

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My legs are tingling,and burning. Painful cramping type sensationsin calves and below,plus feet and toe numbness.

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@dorisdora

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"MS is a condition where your immune system mistakenly attacks the protective covering around nerves in your brain and spinal cord. That makes signals slower or interrupted, which is why you get symptoms like numbness, weakness, vision changes, fatigue."

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@pablo55

My first episode happened in 1995 when I was in college. It electric shock through my body. Then it was the tingling feeling and numbness to my legs. Then it was leg weakness when I would carry the Landry to the apartment up the stairs. My question to everyone is, during time it was my last year and began to struggle in school. During that exasperation is it possible that brain fog was affecting me. At that time I went to campus clinic and the doctor believed I was suffering from a sciatica nerve. It was the only way he could explain the electrical shock. I was later diagnosed in 2003 RRM. Went to many doctors before 2003 and no could figure out what was wrong with till 2003 with an MRI and a second MRI but this time with contrast.

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@MSMommaof2

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Numbness

Me & my neurologist are pretty confident that I have permanent numbness in my hand. Does anyone else have this and if so how are we dealing with it? It’s my right hand (thank goodness not my dominant hand) but annoying none the less. Some days it’s terrible and others it’s not.?

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@Felgi

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Leg numbness

Is anybody else experiencing major leg numbness, especially with the summer heat? It’s better in the morning, then increases and in the late evening in gets somewhat better. Sometimes it goes up to my hips now! I already contacted my doctor but haven’t heard back yet! I am freaking out if that is no...

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@msandpcd

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Numbness/tingling/electrical

Hey newly diagnosed, I have been suffering with numbness/tingling/electrical feeling in my left hand on 2 fingers, running down towards my wrist for about 3 weeks. It is horrible! It started in my foot but went away. Is this normal for relapsing remitting MS?

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31

@show

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Does anyone or has anyone developed speech problems and numbness in the hands and legs ?

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23

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