#numbne - Shift.ms

@Kaye153688

17 Sep 2025 11:09 Edited

When you work in the neurology department as a scheduler, and your manager shares an anonymous patient feedback review with you: (Your scheduler, Kaye, is amazing. Initially, the soonest appointment was mid December. I think that's crazy for having a STAT referral and she was able to get me in much sooner due to a cancellation. She was very empathetic and understanding to my situation, I wish more people could be like her!) I have a feeling I know which patient this was. Little do they know I am advocating for patients more and more each day. I’ve been working on an email over the weekend (staying up until 3am the night before last, hoping I would have it done in time for one of their meetings with all the practice managers at all four locations) to upper management about my suggestions on a new approach to the waitlist and how often gaps are still left open on providers schedules, even when there are 200-300 new patients just desperate to be seen. They’re not only patients with MS, of course, but I remember what it felt like, not knowing what the cause of the numbness and tingling in my lower extremities were. I was diagnosed at 25, only five years ago. We are telling patients we do not have any appointments available until March, 2026 but patients who need to cancel last minute leave gaps in the schedule and there is no accountability or structure in place when it comes to the waitlist. I filled four 40-min new patient spots just last week, so patients did not have to wait until 2026, and already this week, I’ve filled two more. I am planning to make a proposal of taking on the project of waitlist management across all four locations, because I want to ensure it will actually be done right. I work from home, the clinic is only 30 minutes away, but the primary purpose of my current role is non-clinical support that answers incoming calls from patients who are looking to schedule appointments, request medication refills, ask for results from tests, etc.I would much rather be trying to get these patients in as soon as possible, while the others handle the medication refill calls, and assist with scheduling routine follow up appointments. I never knew what I wanted to do career-wise until now. When I was first experiencing the neuropathy at 25, I still don’t know how they managed it, (I was not working in this department yet, but it’s why I choose to work in it now) but I was able to be seen ONE month later. I remember how scared I felt. I went to the PCP first after the symptoms did not go away for two weeks, and then she referred me to neurology. Looking back, if they told me I had to wait MONTHS to be seen, I honestly don’t know what I would have done. There are times I wish I could tell patients that I have MS too, especially when they talk about their neuropathy. They will say: “Can you imagine if your legs felt like that?” and all I can think to myself is, “24/7.” 😂🙈I will never stop advocating for patients. They need someone to speak up for them, especially when the world can be so unfair already. It costs nothing to be kind. 💕

First posted on the Shift.ms app

@mrym4444

7 Sep 2025 05:41Last reply 7 Sep 2025 10:05

Why neurologist of this world can't understand the cause and cure of multiple sclerosis? I can't handle it now. Headache, pain, numbness, inactive bladder, can't exercise from numb legs.... I can't live with it now.

First posted on the Shift.ms app

3

@jacob

31 May 2024 16:26 EditedLast reply 2 Sep 2025 21:55

Waves of numbness and electrical sensation when moving around

Does anyone experience this? I'm not talking about Lhermitte's sign (which I also get) as it's much more widespread and not triggered by neck movement. It's usually worse when my MS is generally worse and my fatigue levels are high. Sitting still it calms down a bit, but when I get up to do someth...

Edinburgh, UK

11

@Krizzy

30 Sep 2023 12:05Last reply 2 Sep 2025 20:40

Numbness

Hi, am new to this so don't know what is going on with my body. I had numbness in my feet and legs for a few weeks till I was diagnosed with Ms end of August. I got put on gabapentin. Worked great for first couple of weeks but started getting numbness back in feet. I have RRMS.. Is this normal, has...

Malvern, United Kingdom

6

@Moew93

1 Sep 2025 00:35 EditedLast reply 2 Sep 2025 17:56

Hey team. I’m experiencing numbness in my pelvis area, I’ve experienced this before & I usually just let it go away on its own or until it effects my walking. It’s not effecting anything yet but it’s been numb for going on 3 weeks now, should I go to the hospital?

First posted on the Shift.ms app

8

@Lawrence1180

28 Aug 2025 20:04 EditedLast reply 28 Aug 2025 20:08

I was diagnosed june 2025 but started noticing symptoms in January and didnt know anything about MS. I started off with vertigo,double vision falling down,headaches,numbness on left side of my face,eye peralysis,dizziness, very weak, shock feelings throughout my legs, high blood pressure, trouble swallowing food, couldnt be in the sun, trouble breathing, mood changes and anxiety. I workout every day though its hard take MS meds plus more and all i can say is no one knows what this is till you have it. I cant do things i used to do and hurts me every day also with a baby girl otw i know i have to stay strong as a MS WARRIOR 🙏

First posted on the Shift.ms app

1

@Zara34

27 Aug 2025 21:05Last reply 28 Aug 2025 07:36

Hi, today I was diagnosed with MS. I had numbness in hands, arms and feets. I changed to healthy diet and numbness in feets went away.I still have symptoms in hands. I am due to be seen by a neurological doctor. I would like to hear from others how they manage daily life with MS? What treatment are you on and are there any side effects of the medication?

First posted on the Shift.ms app

7

Deleted

@Manner

26 Aug 2025 03:30Last reply 26 Aug 2025 06:33

Does anyone have numbness and or leg pain?

First posted on the Shift.ms app

1

@Raceya

18 Jun 2022 17:44Last reply 24 Aug 2025 01:02

Face numbness

A new symptom I’m currently having is my face feeling numb on the right side chin and lips, also under my right eye cheek area. Every now and then I get a stabbing pain under my right eye! I took 800mg ibuprofen and it went away, so thank the Lord for that! I found it’s called Trigeminal neuralg...

12

@JSanchez

8 Jun 2025 09:15Last reply 15 Aug 2025 20:25

Numbness

Hey Guys!! Has anyone else had an experience where their foot went completely numb when waking up? I don't know ow if it's an MS thing or that I just slept in bed the wrong way 😅 Numbness on my whole foot, prevent me to lift my toes up but I seem to lift my heel quite ok.

First posted on the Shift.ms app

5

Shift.ms is better if you're logged in

Topics