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I haven’t been diagnosed with Dementia but i have symptoms of it. I regularly have cognitive issues, difficulty completing familiar tasks, recalling information about what was discussed a few hours back, trouble with speaking amongst other things. My friends and family have commented about my tr...

After nearly 3 years of searching for answers to my wife's rapid cognitive decline, multiple tests and MRIs and second opinions it is clear she has a the syndrome of Dementia. Our local neurologist as well as the team at UCLA agree that the cause is MS. Images show significant brain atrophy. I ...

Hi there good people, Finally plucked up the courage to join this community and connect with fellow MSers who "get it". I don't know anyone living with this disease and often feel quite alone. I work full-time (mostly at home since the pandemic) but have little energy left over to arrange much o...

Yes, it's possible to have MS and dementia, such as Alzheimer's disease. Changes to the brain can be caused by both MS and Alzheimer's disease. People with relapsing-remitting MS, primary progressive MS, secondary progressive MS, and even very mild MS can go on to develop Alzheimer's disease too. Al...

Felt like posting again, it's nearly midnight and I'm always far too awake at night. It has good and bad points. Anyway! Do you know anyone else who had/has MS? My mum had a very aggressive strain of it more than 30 years ago. She was diagnosed in her mid 30's and passed away when she was only 41....

I used to tell people that I was retarded because I would forget things and I was a server and I didn't know what table my orders would go to or I just couldn't walk straight I didn't know what was wrong with me I figured that I did some thing to myself to cause these things to happen to me I rememb...

Morning all I've been prescribed Amitriptyline for neuropathic pain in feet and hands which seems to be getting worse and I'm getting on a daily basis. Having read about possible side effects I am really reluctant to start taking this. Chronic fatigue is my most difficult symptom together with p...

Hey guys! I'm currently investigating what's going on with me and the more I read up and learn the more I think I have MS. I seem be struggling with the cognitive side of things.... my long term memories are fine but my short term ones seem to disappear! This has been listed as a symptom but what ha...

My twin sister has MS and dementia. Been caring for her for 13 years since her divorce. It has taken over me and my husbands lives. We are now 68 and I've got my own health problems. It's a real struggle especially when we lose caregivers, which just happened again. Seems like there is no good answ...

This is my first post, I have symptoms mostly balance, elecric shock feeling down my neck, really bad spacial awareness. My mum had dormat MS for 35 years with no symptoms until she developed dementia, she's now in wheelchair in a carehome. That's another bad/sad story. I am so worried 24/7. I have...

After years of seeing reports of no genetic markers found or genetic ties it sounds like this is being looked into. I can't think of any of my relatives with MS but in this group there are constant references to a grandpa that had it or cousins, etc. For a disease that is relatively rare it seem lik...

In 2018 is very portly and spent 8 weeks in Salford royal, I had a type of dementia I couldn’t find the toilets, didn’t know I was married and thought it was 1982 🙈 I had plasma 5 times in a week and started to get better slowly. My licence was taken off me and slowly I started to feel better. I wa...

I don't yet need PIP, but in researching the Bus Pass concession and Blue Badge entitlement criteria I came across a very negative (good for an appeal) remark in government documents about the ability of PIP assessors. From the Disabled Persons Transport Advisory Committee of Aug 2018 ( https://w...

Telephoned the Leeds MS nurses today to add my name to the list for Ocrevus. Next stage MRI scan to see if my MS is active. I meet the other requirements. Mobilised a massive distance with a struggle yesterday when someone misjudged the distance, when asked, from the entrance to Rodley Nature reser...

Can one be accidently diagnosed with Ms but actually have ALS? My uncle who had PPMS at 67 passed away from Pneumonia and my other uncle within a year of his death passed away at 70 from ALS, his ALS was diagnosed at 69. Both their blood work came back as positive for the gene "C9" which is apparent...

Hi all , as a regular user of my blue badge to get closer to shops, hospitals, doctorss etc as my mobilit y is bad i am really glad for my blue badge and the help it gives me every day. it is getting harder to get parked in blue badge spaces, and i for one am very concerned at the latest proposal t...

Hi all, 5 weeks post diagnosis and start of DMT, Tecfidera. I knew on first symptoms in the shower 18 months ago of the water on my arm Feeling different, progressing to pins and needles and numbness in arm and hand. Fighting with GP to take me seriously that it was not a trapped nerve! And I am a n...

Hello everyone! I just happened across this while browsing through FB this morning and decided I'd give it a go! I'm a 21 year old student from Britain currently studying Fashion & Textiles, I love to design and create clothing! I am just over 2 & 1/2 years diagnosed, 21st Nov 2014 was wh...

Definition of dementia: Dementia is a loss of mental ability severe enough to interfere with normal activities of daily living, lasting more than six months, not present since birth, and not associated with a loss or alteration of consciousness. Doctors trying to re-brand MS as dementia? Any though...

Hello to everybody out there. My name is Brendan. I'm newly diagnosed. I'm 54 years old, 55 on Monday! Diagnosed last November, but turns out I've had it for 27 years, yes 27! My first episode was in 1990. I have secondary progressive ms and a head full of questions. I'm very slowly learning about ...