the darker side of ms
shift.ms was a great help and a lifeline when i first got diagnosed with RRMS in 2022.
jump 4 years, to the month, forward:
i now have SPMS
i now have frontotemporal dementia
i am now 50% paralysed
i had an IQ of 154, now i can hardly keep my cool or string a sentence together.
i was a successful area manager for a group of businesses, now i am on PIP and ESA and JSA.
i was a fiancé owning our house together, now i am single and live with my parents at 43 years old.
if anyone wants to hear about my MS journey with all the negatives
(and the positives) without the fluffy bits; just let me know and i will do it.
a Q&A, a body of text, whatever. i am here to pass on the knowledge.
warriors. waaaaaaaariors. come out to play-e-aaaaaaaaa
thomas x
Hi Thomas, I saw your post and wondered if you'd be interested in coming on Myelin Maniacs. We're putting together an MS podcast built around real people and real experiences, without pretending MS is either all doom and gloom or all inspirational quotes. Your journey from RRMS to where you are now in such a short period is obviously very different from mine, and I think that's exactly why your perspective would be valuable. It's relaxed, conversational and there's absolutely no expectation to sugar-coat anything. The darker side of MS deserves a voice too. If you're interested, I'd love to have a chat first and see if you'd fancy being a guest. 🎙️🧠
Well that's a fuck if a lot of negatives. May you have a forcefield around you to protect from meaningless platitudes. And a big stick.