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Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

Are you the type of person who wants to know all of the facts about progression as early as possible, or would you rather cross that bridge when you get to it? There can be a lot of disparity surrounding the topic of progression, so let us know your thoughts down below 👇 Sharing your opinions c...

Hello! Has anybody tried the Wahls protocol diet? Any success stories, or otherwise?! I have done a lot of research and reading and it all sounds very positive, I tried it for a month and I must admit I felt amazing. Although I don’t really have severe symptoms to notice a massive change, but the fe...

I had a bad relapse recently and lost 80% of vision in one eye. I was in my trial period in a new job and my employer said they could not pay me sick leave and they would like me to continue on a self-employed basis or 'say goodbye'. When I asked for reasonable adjustments to be made, they 'redid'...

I resigned from my job as a teaching assistant over the summer because I was not coping with the physical demands that came with the job and felt like I was not being supported physically or mentally by the HR and management team. I am scared to look for new employment because of how my MS symptom...

Im so tired of this eye ache its been a while since last time and now here it is again 😣 I have no idea if its migraine or its optic neuritis. I use blue light blocking glasses on daily basis but my job is mostly with pc and it’s super painful to look at the monitor :( any tips for me?

It hit me today, after meeting an old friend out of the blue, that my 'new normal' is so different to people I knew well only a few years ago. I have PPMS - and was telling him the craic about the experience. Not sure why, but afterwards I felt that I'd double-check anything I could do from my end....

Hi all! Another question as google doesn't have concrete answers and I don't have an MS Nurse yet. I've been experiencing very SUDDEN urges to sleep. When I was working (start of january) every day around 10/11am I would literally just drop my phone or whatever I was holding and my head would just ...

Hi all, I’m Kate Green and I’m conducting a research project at the University of Central Lancashire looking at your experiences of living with MS and if this has impacted your relationship with fashion. I’d like to ask 5 members of this group to complete a questionnaire but also provide some feedb...

EDIT: thank you for all the kind comments, I posted this almost 2 years ago. I did have an amazing holiday BUT my wheelchair got lost and broken by the airline. I had to rent one in Tokyo which was super easy over there by the emailing the company and they delivered to my hotel. Airport assistance w...