Shift.ms

25 Nov 2020 15:40 Edited

Hello Again

Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

@Thedonasara

14 May 2023 06:28Last reply 21 Feb 2025 21:42

Migraine or optic neuritis

Im so tired of this eye ache its been a while since last time and now here it is again 😣 I have no idea if its migraine or its optic neuritis. I use blue light blocking glasses on daily basis but my job is mostly with pc and it’s super painful to look at the monitor :( any tips for me?

9

@GerardMcC1

6 Apr 2024 22:38Last reply 9 Feb 2025 14:41

I ran into an old friend today - I hadn't seen in years

It hit me today, after meeting an old friend out of the blue, that my 'new normal' is so different to people I knew well only a few years ago. I have PPMS - and was telling him the craic about the experience. Not sure why, but afterwards I felt that I'd double-check anything I could do from my end....

Sheffield, United Kingdom

3

@kellyqt

4 Sep 2024 18:36Last reply 27 Jan 2025 03:17

Sudden onset fatigue?

Hi all! Another question as google doesn't have concrete answers and I don't have an MS Nurse yet. I've been experiencing very SUDDEN urges to sleep. When I was working (start of january) every day around 10/11am I would literally just drop my phone or whatever I was holding and my head would just ...

First posted on the Shift.ms app

9

@Katielane

23 May 2024 14:34 EditedLast reply 27 Jan 2025 03:17

Research looking at experiences of living with MS on fashion

Hi all, I’m Kate Green and I’m conducting a research project at the University of Central Lancashire looking at your experiences of living with MS and if this has impacted your relationship with fashion. I’d like to ask 5 members of this group to complete a questionnaire but also provide some feedb...

Lancashire, UK

15

@NerdyLizzie

27 Mar 2023 19:16 EditedLast reply 27 Jan 2025 03:15

Travelling with MS

EDIT: thank you for all the kind comments, I posted this almost 2 years ago. I did have an amazing holiday BUT my wheelchair got lost and broken by the airline. I had to rent one in Tokyo which was super easy over there by the emailing the company and they delivered to my hotel. Airport assistance w...

19

@ChloeAlexandraa

11 Aug 2024 21:26Last reply 24 Jan 2025 19:47

Diagnosis finally comfirmed

After 18 long years, being diagnosed at 16, then having the diagnoses changed at 20, then reconfirmed as MS last week I am now starting to look at my symptoms for what they are rather than me just struggling with life. I was put on Duloxetine 60mg daily a few months ago as a neuropathic pain kille...

First posted on the Shift.ms app

8

@NickEady

6 Apr 2024 17:57Last reply 21 Jan 2025 23:56

Ill health

I was retired in 2022 through Ill health, got 1 weeks notice, then it really hit home, fortunate to get ill health as it doubled my pension, allowing me to pay my mortgage off completely and clear all my debt, finding living of social difficult, but just about coping, pip review going through now, n...

Newport, Wales, UK

1

@PH8TE

1 Mar 2023 08:42Last reply 19 Jan 2025 10:53

Sleepless

Hey guys going on your 36 hours without sleep I only sleep about 20 to 30 minutes at a time when I can sleep usually maybe four hours every other day I work out when my body will let me try to eat right but still no sleep anyone have some advice?

Mankato, United States

3

@Kitty369

25 Nov 2017 10:49Last reply 14 Jan 2025 16:11

NHS Ill health retirement experiences

Wanted someone to talk to who has been through Ill Health retirement preferably with NHS Contract. I really want some help thinking this through and working out what to do, I am really struggling at work and don’t feel capable of doing it, I feel constantly guilty and like I am letting my team do...

25

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