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Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

I have been out of jobs this past 4 years since i get 20 , I started being unable to work properly to any job , Cant focus , cant remember , and i forget while doing the tasks or trying to study a new information about the work , that had been tough cause no one keeps me at any work like this , i d...

Anyone else get a dreaded brown envelope arrive on the doormat and think 'great another fight to face!' I think the endless reviews of Personal Independence Payment for those of us with MS is absolutely disgusting! I mean did I miss something? Or is there suddenly a cure for Multiple Sclerosis that ...

Hello $Thedonasara, I have been on this medication for 6 years. Yes, I feel fatigue and I can fall asleep at any time of day, when I'm at home. This disrupts my night time sleep routine, but I just work out a schedule. Apart from that, I do not experience other side effects.

I had my mri results today. She said I have lesions on my spine and I need a brain scan. I asked her y and she said she thinks I have a neurological disorder. I asked what that means and she said well the most common one is MS. I googled the symptoms and I have most of them. I struggle to walk. Stru...

I have one more week of usual work next week and then as of the 1st April, my hours are dropping from 40-50 per week….down to about 4-6 hours per week. Due to a number of reasons. Some clients felt like they didn’t want to risk working with someone who might be ill a lot (even though I’ve only take...

Hi all! Can anyone share how life is after having the immune system prevented from working as effective as it should be? Do you get lots of colds or infections? I’m thinking to start either Ocrevus or kesimpta (there are pretty much the same really). I work as a primary school teacher and I’m a bit ...

Hi all! Im seven months into my diagnosis, and would love to get out and about and meet other MS’ers! I’m close to London so could travel into London :))) I’m 26, I was training to be a drama teacher when I got my first major relapse. I never went back but I passed under special circumstances! I n...

Feeling p***** this morning. Angry at the world. Finding it hard to do but neuro dismissed as side effect to a recent maybe chest infection/cold. Still have problems with hand so having issues with legs is really not what I need want now. Worried its here to stay. Concerned the brain fog is also her...

I had physio today hard work but worth it I'm sure I always think it's best to push for excellence but stop when you get tired!😁

The CBT practice variant which interest me the most is mindfulness-based cognitive therapy (MBCT). Why? Because I know from personal experience that it works. In our first course we were tasked with developing a safe and effective use of self (SASE) program and I chose to research mindfulness-based ...

I applied for PIP in November. I went for an assessment in January and failed to qualify - scoring 2 0's. I reapplied (sorry can't think of the proper word :D) after failing and someone from the DWP called me on Monday and spent 25 minutes on the phone with me going through how MS affects my day t...

Any teachers claimed Access to Work?

Hi! Just thought I'd check in to update on my life in general, and ask a few wee things... So I had a super stressful year from 2020-21. I was doing teacher training and kept hitting barriers where I felt so undafe and at risk from COVID whilst on placements. It was looking like all would be OK, bu...

This is just a little rant... PIP. What a waste of time! My decision letter arrived and the report wasn't even close to what I wrote and spoke about in the assessment. It doesn't even reflect the letter I sent in supporting evidence from my neurologist. It's left me feeling like I've been complete...

Have you ever felt like you've backed your self into a corner with no way out? I've been officially told I'm now spms...no great shock I have been for years but neuro always told me I was rrms so I could still have DMT (tec). I've been NEDA since I started, now that mayzent has been approved he wan...

I have just had to accept that I need to give up a well paid job that I loved because of the impact of ms on my cognitive ability. 23 years of working soo hard and it comes to this. Perhaps it’s the new start I need.

Saying hello, first time on Shift. Took me 6 months to be diagnosed after years of symptoms and a bit of medical gaslighting thrown in. I've been on Copaxone, Gilenya and currently on Tysabri. Having a difficult time the last couple of months in work with my boss, which is not helping my fatigue or ...

yesterday at work we had a contractor in doing maintenance (I work in a cafeteria style kitchen for the military). Being in limbo I have no cause for why I'm struggling to walk and just carry on as best as I can. My co-workers and management are supportive and understanding (thankfully no longer pan...

Hello, My name is Dennis and I have RRMS since 2004. I have used some medication untill now Started with monthly Tysabri infusions for several years until I had JC in my system and switched to the oral Fingolimod medication. I did everything again with the Fingolimod, sport, long walks etc. After...