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@LesleyT 

Last reply

LesleyT

Wake up with headache and shaking inside but not outside. Anybody else like this.

I’m feeling down as my legs are heavier and I just now want to sit and do nothing as my legs are heavy and I get the MS hug at the first sign of tiredness. Also, I’ve been told I’ve now got secondary progressive MS and am going through tests to see if I can take Mayzent ( simonipod). Any one else taking this. How is it?? Any side effects?? Thanks.
First posted on the Shift.ms app
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@nancles
@nancles
 

I have some of the same symptoms, and it can be overwhelming for sure. Sometimes I sit and watch to see if the movement can be seen on the outside and wonder if it is in my head (it is not).

@RC83
@RC83
 

Hello I'm not taking it, well not yet anyway. But my neurologist said it is the only drug that is used in this country for secondary progressive. I would be interested to see how you get on as I may well have to myself one day.