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@RoseRivera1214

1 Jun 2025 03:03Last reply 1 Jun 2025 07:24

What to do?? Hi, my name is Rose. I’m new to this app. I was diagnosed with Ms back in 2016. Since than I’ve tried two dmts. Gilenya and mavenclad since than. Gilenya gave me horrible rashes for four years before my neuro switched me to mavenclad. That medication was the absolute worst. I lost about half of my hair and had frequent heart palpitations to where I needed a heart monitor twice. I only did the first year round 1 and never followed up for my second because of fear. I am meeting with my neuro within the next month about starting a new medication. What is some options that he could give me? And what is your personal experience with those DMTS?

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@Skullsandhearts

15 Apr 2025 02:06Last reply 16 Apr 2025 23:27

Hair thinning question

Okay so I was just diagnosed in November 2024. Since then and a little before that ( but it had stopped ) my hair was falling out. Not bald spots. Just super bad thinning. So many people I have met that have MS say it's common. That and the itching. But my neurologist says neither are related. I sta...

First posted on the Shift.ms app

@Krisi

12 Mar 2025 00:10Last reply 12 Mar 2025 19:42

Steroids make your hair fall?

Hi I've been on 3 seasons of steroids but I have noticed that my hair is falling more than usual, nothing extraordinary because I have a lot of hair I tend to shed like my dog 🤣😅 but I don't know if it's hormone related or steroids related anyone with any thoughts about this? You have been all ver...

First posted on the Shift.ms app

@antoniette

8 Feb 2025 06:22Last reply 8 Feb 2025 07:45

I was diagnosed at age 53. With optical nueritis. I used to be a hairs

Im in denial i would love some guidance...I look fine so i hear alot of people say ..You look fine.....deep inside I'm devasted and sad ,mad. MY Dr agrees npt to work. Ill take any advice thanks

Ewing Township, United States

@Sureth1

5 Feb 2025 14:45

I can put my cup on and do my hair and I am South Africa African. I can talk a lot and is very friendly.

First posted on the Shift.ms app

@AmberCharissa

25 Jan 2025 12:47Last reply 27 Jan 2025 03:07

Will I lose my hair?

I read on another MS forum that with Ocrevus many were experiencing significant hair loss?? I haven't yet because I'm only my two half doses in. Dose 2 is in May. Anyone have experienced this with tips to lessen that side effect in the future? Thank you!

First posted on the Shift.ms app

@Tasha_

13 Jul 2024 21:54 EditedLast reply 3 Dec 2024 23:59

Ocrevous and hair loss?

Hello, had my first full dose about a month ago. Realising my hair is coming out a lot.. is this a side effect? Also my skin is dry, is this maybe a side effect? Thanks in advance!

Treatment

@Ceire

7 Nov 2024 14:58Last reply 9 Nov 2024 20:15

Hair Loss Tysabri?!

For all my Tysabri peeps - maybe so for the ladies - hair loss on Tysabri?! While it's not a known side effect, I have noticed my hair has gone so thin since I started on Tysabri! As well as that I am loosing a significant amount of hair on a daily basis, especially when washing my hair! Anyone expe...

First posted on the Shift.ms app

@Liwia

25 Aug 2024 21:58 EditedLast reply 27 Aug 2024 13:12

Partner’s hair loss

Hello. My partner is on ocrevus and he’s got MS. He’s been having quite a noticeable amount of hair loss over the past few months . Is this normal with MS or is it a sign of some deficiency that isn’t MS related ? I’d appreciate some advice since I’m learning to a understand his MS and how to help.#...

First posted on the Shift.ms app

@ruhena2301

19 Jul 2024 15:41

Hair loss / hair growth

Has anyone experienced hair loss or hair growth with ocrevus?

First posted on the Shift.ms app

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