Sorry New to all this
Hey guys, sorry about this, I have literally not spoke to anyone about this , not family or friends cause I just don’t know what to say.. ..so I recently ended up getting diagnosed with RRMS in December just gone,
Literally in November I was out walking with my partner and hit my leg on a half wall of all things, guess I just didnt see it there, thought nothing of it went home went to work the next day. So started with the blurry vision and double vision to the point where I couldn’t move around without being clung to my fella... I slept for around 20 hours a day, wasnt eating or drinking had no energy couldn’t move and to top it off I was losing my ability to talk and move my right leg and right arm,. The hospital and eye centre just couldn’t figure it out at all,they just kept saying it was infection sleep it off etc( from November 23rd till December 16th) I even had a CT scan in a&e cause they were baffled but the doctor said then there was nothing abnormal, finally my gp took my serious and booked me in for an emergency MRI scan on the 15th December after looking at my CT scan and admitting there was something there! 17th December. My doctor called me to see him ASAP then admitted me straight to hospital from there with more MRI scans and blood tests, speech and physio therapy and steroids. Ended up there for 6days -.- we discussed treatment including ocrevus( currently off the cards as wanting a baby, but I also have PCOS) and copraxone( a possibility)
How long after diagnosis did you start a treatment??
I’m still waiting as it stands, I don’t know what to do given the current situation,
It’s been around three months and I’m almost back to normal, visions normal again, and I can walk fine on my own, still struggle with the movement of my right arm, getting a lot of brain fog and fatigue too, but then I have times like now where I’ve been awake for more than 24 hours and I’m not tired haha,
Also I need an opinion, I’ve started to have these weird episodes off lightheadedness, almost blacking out, not being able to lift my arms or legs and slurring my speech, only happened for around 30 seconds a time but it’s 4-10 times a day roughly for the past 3 weeks, it’s rather scary and again I’m not sure what to do, if others experience this or is it something else?
Thank you for taking the time to read my long post, like I say I’ve not spoke to anyone about my diagnosis
Much love to you all
@jade_victoria_cantrill Hi and welcome to the club no one really wants to be in it really but here we are.... Under your post above you'll see some boxes relating to some of the things you mentioned. Click on them and it'll take you to other posts made about that subject. Feel free to ask anything you like we'll try and find an answer one way or another. Above all else try and keep a sense of humour... We've all been where you are one way or another, you'll have messages of welcome soon no doubt. Welcome again.
I was diagnosed in November 2019 and started treatment at the end of January x