Last reply 3 months ago
Isolation letter from MS services

Hello I’ve just received another letter this time from the ms nurse & neurology service.

Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I’d share on here anyway.

Ms patients in the vulnerable category that require shielding are as followed:

Those who have significant breathing or swallowing difficulties. Those who have received lemtrada or mavenclad in the past 3 months. Those who do not fulfil the criteria for extremely vulnerable. Treatment with mavenclad and lemtrada within the past 6 months. Treatment with Gilenya. Ocrevus within the past 12 months.

Avonex, rebif, plegridy, betaferon, extavia, coxapone, aubagio, tecfidera and tysabri treatments do not significantly increase the risk of systemic viral infections.

Gilenya and Ovrevus: risk of viral infections is moderately increased.

If you have had 2 cycles of cladribine or alemtuzumab and the latest round was within 3 months the risk of viral infections is significantly increased.

MRI scans will have a longer than normal wait for scans to be performed. Blood monitoring for patients who are prescribed DMTs may reduce the frequency of tests. Where blood tests are essential your ms team will facilitate this in an outpatient setting.

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3 months ago

Thanks for sharing.

3 months ago

Thanks @lukezni, that brings a bit more clarity 🙂

3 months ago

So technically, 7 months post second year of Cladribine, I should be ok really? I saw the video that Dominic suggested and that said 12 months. I can’t shield completely, I’m on my own and I’ve looked at the on-line deliverys and half the stuff is always missing so I still have to go out…I’m so tired of the what ifs, can’t live your life like it though.

Stay healthy and safe peeps 😊.

3 months ago

@chezy17 it sounds that way. It states that if you have had two cycles of Cladribine in the past 3 months then the risk of viral infections is significantly increased lasting for 3-6 months after a cycle of treatment. Shielding is recommended for patients for a period of 3 months after the date of their last treatment. You too 🤞🏻

3 months ago

Pretty sure I’ve already been exposed to it, my sister had what she thought was flu in Feb after she went back to work at A and E. Exactly the same symptoms, I was around her and had my niece who had caught it but wasn’t as bad, coughed and sneezed all over me and my face. She was only 8 months old 🤷🏻‍♀️. I didn’t catch it, I’ve not had my flu jab last year so I’m probably risking it alot. My son caught flu in December, floored him and I developed a cold about 9 days after and a sinus infection but that was it! I’m hoping that the fact we do have MS, we react differently and for the better for the change but I’m perhaps being a tad optimistic 🤷🏻‍♀️😊.

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