#relapsing-remitting

13 May 2022 12:58Last reply 13 May 2022 19:09

Feeling useles

Hi this is my first post so sorry if I ramble on! I was diagnosed in 2017 with Relapsing remitting MS, I have been on Ocrevus since 2019. I left my job in retail after my diagnosis as I found it too stressful and to be honest they were really shit when I was going thorough my diagnosis! I have had a...

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@Keke

24 Apr 2022 19:25Last reply 24 Apr 2022 22:35

Newly diagnosed

Hi all, I was diagnosed with relapsing remitting in December of 2021. Feeling a bit abandoned after going through so many appointments and tests last winter to checking in once or twice a year going forward. I am on Ocrevus, next infusion is in August. I am grateful for the appointments and care ...

Northfield, MN, USA

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@Townhart1

21 Apr 2022 07:43Last reply 21 Apr 2022 14:11

COVID positive

I am very confused with isolation rules! I tested positive for COVID last Saturday and am I still positive on day 5 yesterday and day 6 today! Do I have isolate still if I’m positive with a temperature? I have relapsing remitting - I’ve stayed home to protect others Thanks Jane

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@Leesav

14 Apr 2022 00:39Last reply 14 Apr 2022 05:37

Young with soo much. Yet still grateful

I was diagnosed with relapsing-remitting MS in 2011, when I was young I was diagnosed with (NF-1) neurofibromatosis. Both rare diseases I unfortunately have both. It is hard because, sometimes some symptoms cant pinpoint, what is causing it and the relationship between two rare autoimmune diseases...

2

@Michelle79

12 Apr 2022 21:20Last reply 13 Apr 2022 08:14

Hi.👋

Hi everyone. I was diagnosed with MS in February this year, I have relapsing remitting. I went for my second consultation this month, and they have decided I should start treatment. They have told me my MS is going to progressive. I have chosen to do the monthly injection at home. Can't remember t...

1

@gem1483

4 Apr 2022 15:28Last reply 4 Apr 2022 20:36

Pins and needles

Hey, I'm newly diagnosed with relapsing remitting MS, I was discharged from hospital around 2 weeks ago,but with no information of how to contact an MS nurse! I've now had pins and needles for at least a week with a numb-ish sensation,is this normal?

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@AndreaG

16 Mar 2022 15:43Last reply 16 Mar 2022 17:05

Worsening Disability in Absence of Relapses ‘Underestimated’ in MS

An article which appeared MS News Today: A substantial amount of disability worsening happens independently of relapses in people with multiple sclerosis (MS), including those in earlier stages of relapsing-remitting disease, a study in a large patient database reported: https://multiplesclerosisnew...

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@Nambie

15 Mar 2022 17:25Last reply 16 Mar 2022 12:38

Newly diagnosed severe RRMS

Hey guys. I have recently been diagnosed with MS And have had a really bad 1st relapse. I came to hospital on the 2nd of December with Vertigo and a bad headache since then I've lost the ability to walk and the use of all of my limbs. To cut a long story short I was moved to a neuro hospital in Ja...

2

@BeatnikSpirit

6 Jan 2020 10:46Last reply 16 Mar 2022 09:08

Plegridy or Copaxone

Hi, I have rejected disease modifying therapies a number of times since being diagnosed with relapsing-remitting ms in 2006. I'm currently being strongly advised to begin using Plegridy or Copaxone. I'd be really interested to know how other people have got on with these treatments please. From...

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@Dawnyb

18 Feb 2022 14:15Last reply 18 Feb 2022 22:59

Newbie

Hi all, new here, diagnosed with relapsing remitting ms in October 2021, waiting to see what treatment I'm eligible for, just thought I'd say hello x

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@larajane1

5 Feb 2022 11:31Last reply 6 Feb 2022 20:27

New Person

Hi to all I am new in here. I have Relapsing remitting Multiple Sclerosis, on Tysabri infusion once a month in Stoke Hospital. Was diagnosed in 2019 I was married at that time but have since separated last year 2021. Quick questions how do people find relationships or is there anyone out there that...

London, United Kingdom

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@wanttorun

2 Feb 2022 12:07Last reply 5 Feb 2022 10:22

Covid - been offered infusions - any advice?

Hi all, I'm just wondering if anyone has had the sotrovimab (xevudy) infusion? I have relapsing remitting MS and am on Tecfidera. I tested positive for covid 3 days ago, symptoms are of a bad cold but nothing too awful. I have been offered sotrovimab but I really felt pushed into it by the Doctor w...

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@sheridanallison

3 Dec 2021 09:35 EditedLast reply 28 Jan 2022 19:33

RRMS and Ocrevus

Hello, My name is Sheridan. I am a 29 year old female, I got diagnosed with relapsing remitting multiple sclerosis in May 2021. I have really struggled with accepting the diagnosis but I think I am slowly getting there :)

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@Anita_Smithson-Ferris

26 Jan 2022 13:56

Copaxone

I've been mostly on copaxone for 15 years. I often consider having a break. Anyone stopped any treatment without any consequences? I'm 61 diagnosed at 32. Relapsing & remitting but possibly secondary progressive.

@Pinkstripes130

24 Dec 2021 23:40

Ponvory approved for England and Wales

https://mstrust.org.uk/news/ponvory-ponesimod-approved-relapsing-remitting-ms-england-and-wales

@Adamsefton1976

19 Oct 2021 23:43Last reply 15 Dec 2021 12:44

Hi and welcome to this ms sufferers website

I was diagnosed with relapsing remitting ms 20 some years ago, my memory has been badly affected and I really struggle with a very over active temper which I struggle to control which means I tend to shout. Perhaps my family don't tend to help me with. My mum is a nurse who thinks she knows everythi...

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@WinchesterMark

26 Nov 2021 10:51Last reply 29 Nov 2021 11:58

Hi All ..... Hello ....<deep breath>

I’m a 55 year old married chap from a village just outside Winchester, Hampshire. UK. I was finally officially diagnosed with relapsing remitting MS a couple of weeks ago following a what’s felt like a lifetime of testing, prodding, poking and muttering from the neurologist about the possibility ...

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@Debbie1969

24 Nov 2021 13:02Last reply 25 Nov 2021 13:12

Hello

Hi I’m new to this group .. looks great .. Was diagnosed with relapsing remitting in 2009 xx

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@Doug_Graham

12 Nov 2021 15:35Last reply 15 Nov 2021 09:14

Pilates has improved my core strength & ability to walk

I spent 20 years in the US Navy. I had a passion for exercise and distance running. Before I retired in 1995 I became aware of new difficulty running and began to have developing eye problems. In 2002 I was finally diagnosed to have Relapsing / Remitting MS. By then I was an Engineering Manager fo...

Colleyville, TX, USA

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@katherine3007

7 Nov 2021 12:35Last reply 8 Nov 2021 16:27

Treatment Dilemma

Hi Everyone. I was diagnosed with relapsing remitting MS earlier this year. I had an appointment to discuss treatment options, which were tecfidera and ocrelizumab. Currently, I am undecided on whether I should start treatment as I have only had one episode back in July (which was when I discovered...

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