#keep - Shift.ms

@Glamluvs5H8MS

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True story really. I am going to stay with my oldest son, here home my other son is overwhelmed, he doesn’t feel comfortable being too far from me🥹 his other siblings have minimized what he seeing maximally! We talk and I do understand his feelings, they are valid! So I’m me meeting my 2 granddaughters who are both under 4 so I am excited yet I have zero income😫 my flight and thing were gifted to me. I’m am grateful for that. I wanted to get to meet my granddaughters before anything else happens. I have hired counsel to assist me in obtaining Disability, I apply a few times and was denied. I can’t even afford my medication. Not looking for sympathy, I guess, just wanted to be more clear, I ABSOLUTELY hate MS and what it’s done to my confidence, yeah I don’t trust myself,& I before this all I was actually looking forward to turning 50! Yeah made it to 50 but I don’t like how I feel and how unsure I am now about the things I was MOST confident about doing, not so much these days and it makes me ANGRY cuz I didn’t plan this nor have the resources to live with this confidently. Praying for a steady body to keep doing what it HAS been doing for 49 years!! Health care is NOT caring these days and I can only say, timing has been my lack for some time now. I digress have a awesome MS’n day everyone. 💜🫶🏾🤟🏾💪🏾🤞🏾✌🏾

Fort Worth, United States

First posted on the Shift.ms app

6

@NeuroPulse

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Alot of yall might agree with me but uh…“MS is the only roommate I never invited… and somehow it keeps changing the thermostat, moving my stuff, and turning off the lights.” 😂

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11

@Angelwings79

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Fighting to keep my independence

New symptoms have been coming on thick and fast. 8 conditions all overlapping MS. In 2.5years my life has changed drastically. 80% cognitive, but coping better as im not going crazy and assessment confirmed cognitive decline. Now my mobility! I've fought this since 2015 pre diagnosis doing little th...

First posted on the Shift.ms app

5

@kala21

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I’m experiencing neuropathic nerve pain in my legs and feet 😔 Its so mentally draining I’m finding it hard to cope with because I got to stay active to keep my mind sane and because I can’t do that right now I’m not coping at all. I’m having bad thoughts and I don’t normally get this low or depressed. How do you all manage this?

Aberdare, United Kingdom

First posted on the Shift.ms app

9

@Jessic

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People continue to talk about me and despise me. However, they are unaware that I keep my mouth shut to conserve my mental and physical energy.

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5

@Kushman420

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Belong refugee here👊🏽. Been on a few DMTs started on Betaseron,Tysabri for 7yrs tested high Jcv+, switched to Ocrevus for about 4yrs then fell off the cliff went on disability in 2021(former CDL operator). Now have been on Kesimpta since 2025 getting around nowadays with my rollator and Zeen. Last but not least couldn't do this without the support of my wife and friends which is so important. This 🐂💩 can get lonely and frustrating always good to have a place like this to connect with others who truly understand. Feel free to reach out anytime!Keep your heads up 💪🧡

First posted on the Shift.ms app

3

@HappyLady42

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New Here : Hello all , I’m Miss Mary . I been diagnosed since 2011 , it’s been rough , but I’m making it. I work out everyday for an hour to keep me grounded I also implemented Nutrition meals . I start with slim fast shake with an apple and I have berries for lunch with dinner I have glazed salmon with fresh lemon to end meal

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2

@paddymac999

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I keep hearing that there's so many wonder treatments that are in the pipeline but how long are they going to be in the pipeline for. It's getting frustrating

First posted on the Shift.ms app

16

@BeaCarroll

Keep on keeping on

Good luck Ruari and keep positive Bea

@mulloney22

How does everyone keep the motivation and energy to get through the day?

Who has problems making it through the day energy wise I am on a current medication for my ADHD, which helps me get through my day without getting so tired. I am on Medication for my ADHD that really helps and I’m happy my doctors put me on it because it really helps with the connections in my brai...

First posted on the Shift.ms app

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