#injection - Shift.ms

Injection

So I've been taking injections since 2021 first plegridy now Kesimpta No bleeding First blood today 😂 this time I've injected myself and drew blood 😅 I don't feel like I did anything different, top of the thigh. Though this is the first time I've been given the cotton swabs and wipes along wit...

Sheffield, United Kingdom

@rachael30f

injection

i take my own injection myself its so easy taken its i feel better its good for me im looking forward taken its again on wednesday

Dublin, Ireland

@superman

Last reply

Injection

I need some advice, I inject myself with plegridy twice a month but this time I'm so anxious. I should have injected on Friday and I still haven't managed to do it. Does anyone have any tips on how to get over the anxiety I feel silly but at the moment I feel I can't do it.

5

@Angelwings79

Infusion vs Injection

So I off for a beautiful day hooked up for my ocrevus infusion (in the uk) has anyone tried the injection form? How was it? Any side effects etc?

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@Flores_Doramis_Jr_

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My doctor told me that occrevus is changing from an infusion to a injection in stomach anybody else heard of this

First posted on the Shift.ms app

12

@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app

4

@Ruddy_PhoeniX

Last reply

Weight loss injections

Dear All I am just curious about weight loss injection and how it interacts with the drugs especially Gilenya. I gained weight after l started Gilenya and want in fact need to lose some. So wondering 8f anyone has ever experienced or used those injections. Thanks for sharing your opinions and ex...

3

@soko

EditedLast reply

I took my second loading dose of Kesimpta and the injection never clicked and went on very fast. Also bleeding and it hurt. Now a bruise. Not sure of some of med leaked out. I feel like the injector pen didn’t work the same as the first one. Has this happened to anyone else? Thanks.

First posted on the Shift.ms app

2

@chloirene

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I’ve decided to start a GLP-1 injection. Who else is on it? How have you found it?

I’m going to start a weight loss injection, in the last two years of my diagnosis I’ve gained over 3stone (20kg). I’ve asked my MS team and they have said it’s safe so I am going to do it. I just want to hear others experiences?

First posted on the Shift.ms app

11

@YogaLady

Last reply

Who’s on the Ocrevus injection?

First posted on the Shift.ms app

25

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