#family - Shift.ms

@mollyb

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Family

Anybody elses family struggle to understand? I'm 16 and my parents haven't been the same since I was diagnosed.

First posted on the Shift.ms app

14

@Fiachrac

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So i have ms and just soldiering on with it but my family seems to walk on eggshells with me and treat me like I cant do anything myself. How did people here tell them to back off without hurting their feelings. I know they mean well but its getting a bit annoying being treated as somebody that cant...

Kilbaha, Ireland

11

@Deborah_Krupa

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Family

Just found out one of my aunts has MS on dad side. Does this raise the chances that I might have it ?

10

@csmith225

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MS affects me cognitive wise. My immediate family thinks I’m ignoring a conversation because sometimes I may forget something they said and sometimes I remember. Is there other Masers that experience cognitive issues? And if so, how do you explain the problem to family.

First posted on the Shift.ms app

12

@Treesa52

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Does anyone have a physical job? I walk a lot daily. By the end of the day my spasticity is so bad I can barely move, forget walking… I just want to melt into my recliner when I get home. My family gets so frustrated that I don’t cook dinner enough. They just don’t understand the severity of my pain even when I try to explain it to them. Living with MS is frustrating! No one understands the pain we go through.

First posted on the Shift.ms app

26

@diegorfloresm

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How many times have you had 0% energy but still had to push yourself to be there for family or friends? It made me feel terrible.

First posted on the Shift.ms app

17

@billhu

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Been 12 years and Ms has taken everything from me my job my family my reason to even get up. And nobody seems to even acknowledge what is wrong. I hope the future people have more results than myself. I am at the end of one terrible journey

First posted on the Shift.ms app

2

@nexas

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Jef, had MS for 40 + yrs. I was a social worker for 18 yrs. No I'm worthless. I have no wo wife no change ldren. Family but not liked by family members due to causing demize of f entire family as a result of me I think

First posted on the Shift.ms app

14

@sdqayl

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Seeking Advice on Disclosing My RRMS to Family

Hi everyone This is my first post here. I was diagnosed with RRMS in 2023 though I believe I’ve had symptoms for many years prior to my diagnosis. Personally I felt relieved to finally have a diagnosis after years of uncertainty and being medically gaslit. I’m struggling with whether to disclose m...

First posted on the Shift.ms app

7

@jamieerogers

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I was diagnosed with MS in June 2025. Has anyone else found they catch everything that goes around? I work from home and honestly rarely leave as my MS is not controlled. But I literally am catching everything. Last month it was walking pneumonia and now bronchitis. I live in Iowa but we have had a mild winter. I am guessing my family is being the germs into our house. Has anyone else experienced this and if so how do you manage it? I eat very clean and already take a bunch of vitamins and drink a gallon of water daily. Would an air purifier help do you think?

First posted on the Shift.ms app

3

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