Shift.ms

16 Sep 2025 01:07Last reply 16 Sep 2025 07:39

Newly Diagnosed

Hi all!, My Mayo Clinic neurologist told me about this MS test that predicts accurately the likelihood of an attack or new lesions within the next 2 months. I'm excited and hopeful to hear the results. I'm hoping it will assist in my treatment plan. I was diagnosed June 3rd of this year with RRM...

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@darksabre

9 Aug 2025 01:11Last reply 11 Aug 2025 01:57

Newly diagnosed with ppms

My doctor is starting me on samples of Ocrevus next week and I'm scared after hearing the horror stories related to it he told me I've got an aggressive primary progressive ms which you never want to hear from your doctor aggressive 😭 but now I'm accepting everything it's horrible and my poor mothe...

El Paso, United States

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@jwilson73

17 Jul 2025 17:47Last reply 19 Jul 2025 06:41

Where are your lesions? Mine are brain and spine, newly diagnosed.

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@Lindushka

10 Jul 2025 19:32 EditedLast reply 11 Jul 2025 09:23

Thoughts of being newly diagnosed

Hi everyone, I'm new here, got diagnosed about 2 months ago after optic neuritis and 4 months of waiting for the results. I feel relieved to have the diagnosis but also feel like I'm "fake" and "guilty" seeing as my only symptom is my eye problem. Has anyone had similar experiences/feelings after th...

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@lovingkind1

18 Jun 2025 02:43Last reply 19 Jun 2025 09:50

Hi, I'm newly diagnosed. It took almost a year. The next step is a spinal tap. Has anyone had one? If so, what is it like? I'm nervous.

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@Nadwt93

16 Jun 2025 21:27Last reply 17 Jun 2025 06:01

Newly diagnosed.. about to start Ocrevus

Hi all Newbie here Was diagnosed a couple of weeks ago waiting for a date to start Ocrevus. Its been a crazy two years. I was told I had a stroke two years ago but then a couple of weeks ago neurologists confirmed it was MS showing itself for the first time. I already greived through having a “stro...

First posted on the Shift.ms app

@courtneyhenryxo

26 Nov 2024 22:03Last reply 8 Jun 2025 19:58

Newly diagnosed and feeling in limbo

So my mri results came back with lesions to the neck spine and brain I was referred to one of the top neurologists for ms here in Northern Ireland, but I feel like I’m in limbo,the supposed wait is 70 WEEKS! new symptoms come and go but most recently I’ve developed a limp and my foot is agonising to...

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@Shazmond27

11 Nov 2024 00:42Last reply 8 Jun 2025 18:38

Newly diagnosed

Hi all 👋 I've recently these last two weeks been having stabbing pains in the left side of my head. They last between 30 secs and a couple of minutes but I've noticed I'm having them more frequently like 10-15 a day. Not sure if its ms related or not? My hubby thinks its because im so tired all the...

, United Kingdom

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@lucybeamish99

15 Jan 2025 00:58Last reply 8 Jun 2025 18:30

RRMS newly diagnosed

I was diagnosed in April last year and I have had my first treatment of mavenclad but for the past three months I’ve been in a flare up and still struggling. I feel like a burden to everyone who’s looking after me I do work part time as a TA for special needs children and I love the job. I’m just so...

First posted on the Shift.ms app

@CindyMH

25 Jan 2025 20:21Last reply 8 Jun 2025 18:29

Hello everyone 😊. A little about myself. I was diagnosed with MS (after experiencing a few different symptoms (🤔maybe in a period of 3 months or so 🤷🏼‍♀️). This happened November 2008 at the age of 30. After being discharged from the hospital, I went to see a neurologist who started me on daily injections. I don’t recall too much, however I remember the Dr telling me newly diagnosed patients will have a relapse in about 2 years. I was on injections (which injections 🤷🏼‍♀️) less than a year (due to insurance). About 2-3 years later, I again have insurance. I recall hearing anything you take or do to yourself can trigger your “MS”. So because of that, I refused to be back on meds/injections. My way of thinking (maybe not the healthiest) was “It’s been close to 4 years and I haven’t had a relapse or suffered from it. Fast forward ➡️, almost 16 years later I have never experienced anything to do with MS since the time I was diagnosed. I’ve doubted (and still do) of my diagnostic was correct. A few years ago I had some tests done on me and according to Dr- I still show cloudy patches bla bla bla. I’m very thankful and blessed with myself but I’ve also wished and prayed MS didn’t exist. I wish everyone the best, NEVER lose hope or faith and always be thankful you don’t have it worse 🥰.

First posted on the Shift.ms app

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