Travel
Hi,
I had some problems when traveling and wondered if anyone had similar or could offer suggestions, or at least just want to vent my frustration!...
I was diagnosed a few months ago (although for a year before was experiencing symptoms). I am still physically fully able, however often get pins and needles, slight weakness and back pain. I do on occasion fly alone to visit friends who live abroad and I can roll my small carry on suitcase and walk about the airport just fine.
The problem just comes if it's the kind of flight you have to go up steps for and also getting the case up onto the security check or into the overhead locker as I feel too weak to actually lift it. I don't want to go to the extremes of asking for special assistance as it really is just at these points and often someone around is kind enough to help, however today I struggled so asked a steward who told me they are not supposed to help with this. I also got the impression they thought that as a thirty year old who looks perfectly well and has clearly rolled the case this far alone I shouldn't even be asking.
This is an example of other similar situations, often to do with travel, not just flying but trains etc especially with luggage and also finding seats. I wouldn't at all class myself as disabled (although I know the line for that with MS is a bit vague) as I can walk ok etc, just sometimes need a hand lifting things or need a seat!
Anyone else experienced similar situations/frustration with this?? Should I be asking beforehand for airport assistance or just keep relying that someone kind will be around? And how do you put it when asking for help or a seat? (I have usually said back problems even when it isn't that as seems the easiest thing to say, or sometimes had agonising journeys standing as not sure how to ask).

@amys , you need to follow the "Prepare for the worst and hope for the best" philosophy. It's better to ask for airport assistance, rather than risk getting caught up in unexpected situations, e.g. extended queueing. It is not a sign of weakness, it's forward thinking. It would be wise to acquire one of these cards, http://www.mssociety.org.uk/ms-resources/ms-assistance-card , which you can show, when the need arises, to explain why you need help.
I think there should be a blue badge a bit like the baby on board ones for pregnant mothers on tubes. Is hard when outwardly you don't look ill but standing for long periods especially in heat is tough.