Looking for
something specific?

1. No ramp? Cool, I’ll just grow wings. 2. Door opens outwards? Love wrestling architecture for fun. 3. Toilet upstairs. Guess I didn’t really need to pee. 4. Ramp = vertical slide. Is this accessibility or the Winter Olympics? 5. Shiny floors. Surprise! You slipped and broke your neck.. 6. Dis...

St1gzy, Garmin, brain fog, foot drop, Warlock, podcast chaos and the everyday circus of living with multiple sclerosis—all turned into a song. Should we use it for Myelin Maniacs? An intro? An outro? Or should someone confiscate my internet access? 😂 Let us know in the comments. 🎙️ Want to join th...

One of the weird little MS things I get is with shoelaces. I can be absolutely fine, then after something like my 6-minute treadmill challenge or halfway through a walk, I notice a lace has come undone. Easy fix, right? Except I bend down to tie it and suddenly it feels like my fingers have multi...

Forget Maslow for five minutes. My version is much easier to understand. Level 1: Basic Fucks “Have I eaten?” “Have I slept?” “Why am I angry?” “Probably because I’ve done neither.” Level 2: Safety Fucks “Can I get through today without falling over, breaking something or telling someone to piss ...

A little while ago I threw an idea out on here. What if there was something where people with MS could just talk honestly about what living with MS is actually like? Not doctors. Not neurologists. Not someone reading a leaflet explaining fatigue to people who've been fucking exhausted since Tues...

I've been asked quite a few times now if I'd go on a podcast and just talk openly about MS. Not the polished medical version. The actual living-with-it version. So it's got me thinking... What if instead of one person talking about MS, we got a small panel together from completely different points...

Not sure it’s my Ms or my learning disability needs!!!!!! But I have stupid /ridiculous thoughts in my head so annoying and frustrating!!!!! I do try and train my brain ☺️but it won’t go away!!!!!!!! Does anyone brain do this?