#pain - Shift.ms

14 Sep 2025 19:11Last reply 14 Sep 2025 23:46

Exercise

I love moving around but I always be in pain, like I wanna work out and stuff but my body is saying hell no sit down! Sometimes i listen sometimes i dont. Like I miss being able to do things

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@fighterdeb

13 Sep 2025 08:54Last reply 13 Sep 2025 20:15

Hi ive had a really painful shoulder for a few days. I'm taking painkillers & ibuprofen. It's really hard to reach out or lift it up. Thought it might be a frozen shoulder but hope it's just an MS thing & goes as quick as it's come. Anybody else experience this problem Thanks

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2

@Jimmy369VT

12 Sep 2025 18:27Last reply 12 Sep 2025 18:32

Hey everyone, it has been a while since I have checked in with the group. I have still being tested and poked and prodded and my neurologist is still saying it is MS even though he has not found the signs he is looking for, but all of the other things he has been testing for has been coming up negative And he says that the only thing left is MS and I’ve been told by several people don’t expect them to find what they are looking for as quick as I want them to find it. It takes time and it just feels like I am their personal science experiment at this point, but they have put me on some prescriptions to See if they will help me and I have also been doing some apothecary treatment that seems to help my nerve pain a little better than everything. They have been giving me. I have been treating myself with apothecary and their prescriptions and it seems to take my pain level down to a level two cause on my good days I used to be a level four and on my bad days, the scale wouldn’t go high enough to measure my pain when I was having flareups, but both my primary care physician my neurologist, both said to never go back to work because I am considered a liability, a fall risk and I have seemed to agree with them about going back to work for the fact that I have to take frequent breaks to catch my breath or energy And a hour break turns into a two hour break for me just to make it through the day I have to take at least 15 to 20 small breaks the last job I had before my doctor told me to stop working. They let me go for the fact that I had to Take too many breaks and half of them were to use the bathroom to change my urinary products and I have learned if I push myself too much I will not be worth anything. The next day there are days where I hurt so bad I can barely get out of bed, but with the treatment that I have been doing, they have been getting less frequent and I have been able to manage to have more better days than bad days but when the bad days hit, they hit hard but overall, I am still doing pretty good and I haven’t felt Pretty good in a long time. I know I’m not going to ever be completely cured but with the management I have been doing it has seemed to help a lot more than just what the doctors have been wanting me to do the apothecary. I have been using turmeric a super B supplement And cayenne pepper and it seems to help the medication‘s. The doctors have me on work a little better my nerve pain and joint pain are not as bad anymore. When I wake up my feet do not hurt as long as they used to when I first hit the floor and I have been working on my diet and the foods I’ve been eating to see if that will help and I appreciate the group, it has really helped me find the support and guidance. I need to keep myself motivated to keep my treatments going.

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1

@chicks

10 Sep 2025 14:31

I was Dx last year. Last month I was approved for Ocrevus. I start next month. For the past couple of months I’ve been having issues with my legs. There tingling, numb, give out and pain in my feet when walking. I’m torn because I have to work but I’m not able to make it in. I help patients everyday as a PSR but how can I help others if I can’t help myself. I just feel like I’m falling apart. Sorry for venting hoping someone can relate.

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@Peter_Bishop

9 Sep 2025 09:43Last reply 9 Sep 2025 10:16

Face Pain

Does anyone get pain in 1 side of their face. I though it was Toothache but i have seen my dentists and they have assured me there is nothing wrong with my teeth and my Xray is fine so they have suggested it could be nerve pain caused by the MS. Just wanted to check if anyone else has had this befor...

Ramsgate, UK

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@Santos8605

8 Sep 2025 15:28 EditedLast reply 9 Sep 2025 05:23

Hi my name is Santos im from Houston tx.I had a stroke in 2020did not see specialist until 2022 dealing with all the Ms symptoms,I was diagnosed with Ms in 2022 well I have every symptom of Ms I know not every one have all the symptoms it variance from people.it was difficult at first to understand that Im not same person at first. Now I know what I can do is really difficult to process things at times sometimes it takes me days,I have heavy arms and legs pain in my arms and fingers basically my whole body is heavy my doctor confirm that all my body is heavy. Im tired exhausted most of the time I work out 5 times a week, I eat healthy.I cannot not get mad,stressed.,or sad,argue, I start getting like a tik on my head and body letting me know I need to stop if not I will get pain all over my body and exhaustion , is hard people thing that im avoiding communication is not that I know what my body can handle I choose me not caring what people think.if I do something for example like clean and dtoo much my body get exhausted my body will shut down then I cannot do anything sorry for the long text I just want to know if anyone out there with same issues I know there is more people having this issues well I have more issues ralated with Ms .but I want to know how you are dealing with these issues.

Houston, United States

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4

@BM96

8 Sep 2025 10:04Last reply 8 Sep 2025 10:38

Does anyone else get painful fingers and arms

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3

@Aluna88

7 Sep 2025 16:53

Restless leg and nerve pain

How are you handling this symptoms?? Are you taking any vitamins or medication to cope with the symptoms? I have been in different DMTs, now I am taking Kesimpta and I’m not feeling well on it either. I seem to have loads of side effects, ma symptoms, and then some extreme symptoms as well. Not sure...

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@mrym4444

7 Sep 2025 05:41Last reply 7 Sep 2025 10:05

Why neurologist of this world can't understand the cause and cure of multiple sclerosis? I can't handle it now. Headache, pain, numbness, inactive bladder, can't exercise from numb legs.... I can't live with it now.

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3

@Enn_Ayy

6 Sep 2025 13:14Last reply 7 Sep 2025 04:56

Prickly ear pain

This is going to sound odd, but... This week I have been having the oddest painful tingling in my left ear. Not in the ear canal but actually on the cartilage. It feels like I'm being poked with sharp needles and it's gotten gradually worse all week. Wondering whether anyone has felt similar sensat...

First posted on the Shift.ms app

2

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