Living with MS
I was diagnosed with primary progressive multiple sclerosis in March and I'm clueless to see why I was just diagnosed and I'm getting worse walking and my pain is getting unbearable. But I see people on here able to work and they have had ms fir years. What I'm wondering is there something else going on
I'm so sorry to hear of your diagnosis. I have MS two but I have the relapsing MS but have had to quit work because my cognition is so affected a really slowed by the lesions in my brain I have dropfoot just a lot going on but I know that some people have it worse than me so I try to be grateful. But as far as your situation I'm wondering if someone is diagnosed in March does that really represent when you started having the disease because the disease will progress whether you know you have it or not. I had MS for 15 years before I was diagnosed and the last three years were a struggle and I still couldn't get a diagnosis from a neurologist I had to go to a spine surgeon who told me, "dear you don't need a surgeon you need a neurologist and he showed me all the lesions in my brain my neck my spine. So what I'm trying to say is I was diagnosed in 2018 but my disease had been progressing since I actually had my first attack from MS 15 years earlier. is it something that you can talk to your doctor about? My heart goes out to you prayers good luck my friend
@nicology I'm just not understanding why it's effecting me so quickly. I was working at the middle of March and now I feel so useless