#newly diagnosed - Shift.ms

16 Jun 2025 21:27Last reply 17 Jun 2025 06:01

Newly diagnosed.. about to start Ocrevus

Hi all Newbie here Was diagnosed a couple of weeks ago waiting for a date to start Ocrevus. Its been a crazy two years. I was told I had a stroke two years ago but then a couple of weeks ago neurologists confirmed it was MS showing itself for the first time. I already greived through having a “stro...

First posted on the Shift.ms app

@courtneyhenryxo

26 Nov 2024 22:03Last reply 8 Jun 2025 19:58

Newly diagnosed and feeling in limbo

So my mri results came back with lesions to the neck spine and brain I was referred to one of the top neurologists for ms here in Northern Ireland, but I feel like I’m in limbo,the supposed wait is 70 WEEKS! new symptoms come and go but most recently I’ve developed a limp and my foot is agonising to...

First posted on the Shift.ms app

@Shazmond27

11 Nov 2024 00:42Last reply 8 Jun 2025 18:38

Newly diagnosed

Hi all 👋 I've recently these last two weeks been having stabbing pains in the left side of my head. They last between 30 secs and a couple of minutes but I've noticed I'm having them more frequently like 10-15 a day. Not sure if its ms related or not? My hubby thinks its because im so tired all the...

, United Kingdom

First posted on the Shift.ms app

@lucybeamish99

15 Jan 2025 00:58Last reply 8 Jun 2025 18:30

RRMS newly diagnosed

I was diagnosed in April last year and I have had my first treatment of mavenclad but for the past three months I’ve been in a flare up and still struggling. I feel like a burden to everyone who’s looking after me I do work part time as a TA for special needs children and I love the job. I’m just so...

First posted on the Shift.ms app

@CindyMH

25 Jan 2025 20:21Last reply 8 Jun 2025 18:29

Hello everyone 😊. A little about myself. I was diagnosed with MS (after experiencing a few different symptoms (🤔maybe in a period of 3 months or so 🤷🏼‍♀️). This happened November 2008 at the age of 30. After being discharged from the hospital, I went to see a neurologist who started me on daily injections. I don’t recall too much, however I remember the Dr telling me newly diagnosed patients will have a relapse in about 2 years. I was on injections (which injections 🤷🏼‍♀️) less than a year (due to insurance). About 2-3 years later, I again have insurance. I recall hearing anything you take or do to yourself can trigger your “MS”. So because of that, I refused to be back on meds/injections. My way of thinking (maybe not the healthiest) was “It’s been close to 4 years and I haven’t had a relapse or suffered from it. Fast forward ➡️, almost 16 years later I have never experienced anything to do with MS since the time I was diagnosed. I’ve doubted (and still do) of my diagnostic was correct. A few years ago I had some tests done on me and according to Dr- I still show cloudy patches bla bla bla. I’m very thankful and blessed with myself but I’ve also wished and prayed MS didn’t exist. I wish everyone the best, NEVER lose hope or faith and always be thankful you don’t have it worse 🥰.

First posted on the Shift.ms app

@ruari

19 Feb 2025 09:38Last reply 8 Jun 2025 18:29

Newly diagnosed

Hi there This is my first post. Great to see this available as support. I had a double vision attack shortly after my partner who at 33 weeks pregnant lost her job overnight as her company went into administration, missing out on a years paid maternity leave. It was a stressful time getting the ...

First posted on the Shift.ms app

@stevethomo

7 Mar 2025 15:40Last reply 8 Jun 2025 18:27

Newly diagnosed

Hi All, please see the attached link. I am sure this will help anyone who is newly diagnosed. Check it out a sthere a spaces left, https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.ms-uk.org%2Fnew-to-ms-course%2F%3Ffbclid%3DIwZXh0bgNhZW0CMTAAAR01EZ46Q54CKFTgOPxZoFQFe3P9oVgxJ4Q_9YRK4BBsZjX24pmoSv9froA...

Romford, UK

@ReddRose

14 Mar 2025 23:18 EditedLast reply 8 Jun 2025 18:22

Newly diagnosed

I am trying to find people my son can relate to. He is 25, newly diagnosed and is already in a wheelchair, so maybe someone can reach out and connect with him.

First posted on the Shift.ms app

@charl1

15 Mar 2025 22:22Last reply 8 Jun 2025 18:22