@SarahLaine 

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SarahLaine

Newly diagnosed, what am I in for?

Just diagnosed in the last week or so (36yo first and only known symptoms Dec 25). I’m feeling OK about it because Drs have basically said “with DMTs symptoms will be minimal” so by all accounts not expecting much to change. Without putting the fear of god in me 😂, how accurate is that? Just wondered what everyone’s experience is? Also, how do you know what’s MS related and what’s just general health? Thank you in advance ☺️
@emmasharp23

Welcome to the club nobody wanted to join! Really glad you are feeling OK about the diagnosis, for a lot of people it's very overwhelming, but being positive mentally definitely helps. The aim of a DMT is to stop any further relapses and therefore prevent acquiring new symptoms, the ones you already have are likely to stay with you. Everyone's MS journey is different, on some DMTs some people experience improvements in symptoms. It sounds like you were diagnosed quite quickly before too many relapses, so hopefully for you, your life won't change that much. For most people their symptoms flare up when they are triggered, can be caused by lots of things like getting ill, too hot or too cold, overdoing it, too much stress, different for each person but over time you will work out what your triggers are and avoid them. Knowing what is MS related and what is general health is tricky, doctors tend to blame everything on the MS. Make sure to understand what a relapse is, if you have one tell your MS team straight away as it can be treated with steroids and you may need to change DMT if yours isn't preventing relapses. Hope this helps, feel free to ask any questions you have on this site, it's tough at the beginning trying to navigate everything and adjust, hopefully we can make it a bit easier.

@mellowmedusa

Everyone's experience varies. But the goal for MS these days is for it to be boring as DMTs are very good at suppressing relapses and symptoms. I always say in these type of newbie posts that outcomes in MS are related to three things - DMTs (the most efficacious one you're eligible for), lifestyle (sleep - she says at 3am, diet/exercise, low stress) and luck. Online forums can be dangerous. One on hand, lots of advice, commiseration and 'me, too!' On the other hand, people with more problems associated with their MS are more likely to frequent forums and give you a skewed idea of what your journey might be like. I'd advocate for learning as much as you can about the disease but then mostly staying away from MS-related online spaces. Too many people identify so strongly with the disease that their every waking minute and every sensation their body experiences is all MS, all the time. That's not good for anyone. As for me, for comparison's sake, I'm 48, RRMS, on Ocrevus. I'm fine and still working full-time. I have some slight stiffness in my right leg as my only real symptom but it doesn't stop me walking or doing anything I want to do. I was diagnosed when I was 44 but with a high lesion burden in brain and spine that probably meant I've had the disease for a long time! Good luck and take care.