#nervepain - Shift.ms

@Jimmy369VT

12 Sep 2025 18:27Last reply 12 Sep 2025 18:32

Hey everyone, it has been a while since I have checked in with the group. I have still being tested and poked and prodded and my neurologist is still saying it is MS even though he has not found the signs he is looking for, but all of the other things he has been testing for has been coming up negative And he says that the only thing left is MS and I’ve been told by several people don’t expect them to find what they are looking for as quick as I want them to find it. It takes time and it just feels like I am their personal science experiment at this point, but they have put me on some prescriptions to See if they will help me and I have also been doing some apothecary treatment that seems to help my nerve pain a little better than everything. They have been giving me. I have been treating myself with apothecary and their prescriptions and it seems to take my pain level down to a level two cause on my good days I used to be a level four and on my bad days, the scale wouldn’t go high enough to measure my pain when I was having flareups, but both my primary care physician my neurologist, both said to never go back to work because I am considered a liability, a fall risk and I have seemed to agree with them about going back to work for the fact that I have to take frequent breaks to catch my breath or energy And a hour break turns into a two hour break for me just to make it through the day I have to take at least 15 to 20 small breaks the last job I had before my doctor told me to stop working. They let me go for the fact that I had to Take too many breaks and half of them were to use the bathroom to change my urinary products and I have learned if I push myself too much I will not be worth anything. The next day there are days where I hurt so bad I can barely get out of bed, but with the treatment that I have been doing, they have been getting less frequent and I have been able to manage to have more better days than bad days but when the bad days hit, they hit hard but overall, I am still doing pretty good and I haven’t felt Pretty good in a long time. I know I’m not going to ever be completely cured but with the management I have been doing it has seemed to help a lot more than just what the doctors have been wanting me to do the apothecary. I have been using turmeric a super B supplement And cayenne pepper and it seems to help the medication‘s. The doctors have me on work a little better my nerve pain and joint pain are not as bad anymore. When I wake up my feet do not hurt as long as they used to when I first hit the floor and I have been working on my diet and the foods I’ve been eating to see if that will help and I appreciate the group, it has really helped me find the support and guidance. I need to keep myself motivated to keep my treatments going.

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@Aluna88

7 Sep 2025 16:53

Restless leg and nerve pain

How are you handling this symptoms?? Are you taking any vitamins or medication to cope with the symptoms? I have been in different DMTs, now I am taking Kesimpta and I’m not feeling well on it either. I seem to have loads of side effects, ma symptoms, and then some extreme symptoms as well. Not sure...

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@lcritchl

10 Jul 2025 07:34Last reply 11 Jul 2025 19:48

Anyone with nerve pain in feet - what helps?

Thanks

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3

@nics72

2 Apr 2025 17:15Last reply 9 Jun 2025 08:27

Nerve pain?

Hey everyone! Newly diagnosed after having 5 weeks of numbness in both legs that started at feet and progression up past my knees. Was started on iv steroids, but it never really cleared up. Neurologist told me could take up to 6 months. But now I'm having pain in my legs and knees as well? My Neu...

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@Wyndeem1

19 May 2025 11:51Last reply 19 May 2025 13:07

I've been experiencing what I think is nerve pain for a week. My skin hurts all over, feels like when you have a sunburn. Barely touching my skin is painful. I'm scared. Is this a flare up?

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2

@JEvans1994

26 Apr 2025 18:29Last reply 26 Apr 2025 21:40

Nerve pain

Hey how's it going everyone? A quick one does anyone have any good nerve pain home remedies? My left arm has been on fire all day with the odd blast excruciating pain . Got steroids prescribed today but take a day or two to help

, United Kingdom

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3

@skezz

22 Apr 2025 11:47

MS & Mounjaro - nerve pain

Hi Guys, Has anyone experienced allodynia whilst on mounjaro? My boyfriends mum seems to believe il be more susceptible to it as there are study’s suggesting it can irritate the CNS causing more pain sensitivity and altered sensation. There doesn’t seem to be much study on it but I didn’t have allod...

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@DebGA

2 Apr 2025 13:27Last reply 2 Apr 2025 15:56

Nerve pain

I've been diagnosed since 1991 and every thing has been on my right side now I have been dealing with a numb and painful butt it the pain to walk and sit down and even try to sleep I haven't found a new neurologist is there anything that I can take over the counter for the pain HELP please Thank yo...

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6

@holly12345

27 Mar 2025 15:24Last reply 27 Mar 2025 20:21

Nerve pain across the head?

Has anyone here experienced sharp, short, painful nerve pain around the head? Had a bad cold which brought on some MS symptoms. The worst is shooting nerve pain every minute or so across the side of my head and base of head, so painful it makes ne feel sick (and I cried like a baby)!

, United Kingdom

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3

@SmokeyDad

20 Mar 2025 17:51Last reply 22 Mar 2025 01:20

So before I was diagnosed a hand Dr did a nerve test on my right arm. About a month later I developed nerve pain and severe itch on my top of elbow . A month later I was diagnosed with Ms . Gabapentin is the only thing that’s calms it down ! I’m guessing I’ll have this for the rest of my life? Does anyone else suffer from this? Inside of hand has what I call neuropathic itch

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