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Registered Company: 06000961

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@Thia84 

Last reply

Thia84

Anyone else diagnosed with Spinal MS? I had never heard of it until I was diagnosed a year ago. I have cists from my C1 to C7 of my spine. Causes paralysis on my right side and severe nerve pain that is like seering burning needle like pain in my left. My eyes, hearing and memory has been greatly affected too.

Whittier, United States
First posted on the Shift.ms app
8

@lincolnramsay 

Last reply

lincolnramsay

Does anyone have a suggestion for footware (sneakers) that don't hurt? The nerve pain in my feet make walking especially painful.

First posted on the Shift.ms app
19

@Louisa 

Louisa

Nitrofurantoin causing nerve pain

Hi. I started taking nitrofurantoin as a prophylactic for UTIs in April. Since then I've had nerve pain down my right side from head to toe. Has anyone had a similar experience with nitrofurantoin causing nerve pain?
London, United Kingdom

@Jimmy369VT 

Last reply

Jimmy369VT

Hey everyone, it has been a while since I have checked in with the group. I have still being tested and poked and prodded and my neurologist is still saying it is MS even though he has not found the signs he is looking for, but all of the other things he has been testing for has been coming up negative And he says that the only thing left is MS and I’ve been told by several people don’t expect them to find what they are looking for as quick as I want them to find it. It takes time and it just feels like I am their personal science experiment at this point, but they have put me on some prescriptions to See if they will help me and I have also been doing some apothecary treatment that seems to help my nerve pain a little better than everything. They have been giving me. I have been treating myself with apothecary and their prescriptions and it seems to take my pain level down to a level two cause on my good days I used to be a level four and on my bad days, the scale wouldn’t go high enough to measure my pain when I was having flareups, but both my primary care physician my neurologist, both said to never go back to work because I am considered a liability, a fall risk and I have seemed to agree with them about going back to work for the fact that I have to take frequent breaks to catch my breath or energy And a hour break turns into a two hour break for me just to make it through the day I have to take at least 15 to 20 small breaks the last job I had before my doctor told me to stop working. They let me go for the fact that I had to Take too many breaks and half of them were to use the bathroom to change my urinary products and I have learned if I push myself too much I will not be worth anything. The next day there are days where I hurt so bad I can barely get out of bed, but with the treatment that I have been doing, they have been getting less frequent and I have been able to manage to have more better days than bad days but when the bad days hit, they hit hard but overall, I am still doing pretty good and I haven’t felt Pretty good in a long time. I know I’m not going to ever be completely cured but with the management I have been doing it has seemed to help a lot more than just what the doctors have been wanting me to do the apothecary. I have been using turmeric a super B supplement And cayenne pepper and it seems to help the medication‘s. The doctors have me on work a little better my nerve pain and joint pain are not as bad anymore. When I wake up my feet do not hurt as long as they used to when I first hit the floor and I have been working on my diet and the foods I’ve been eating to see if that will help and I appreciate the group, it has really helped me find the support and guidance. I need to keep myself motivated to keep my treatments going.

First posted on the Shift.ms app
1

@Aluna88 

Aluna88

Restless leg and nerve pain

How are you handling this symptoms?? Are you taking any vitamins or medication to cope with the symptoms? I have been in different DMTs, now I am taking Kesimpta and I’m not feeling well on it either. I seem to have loads of side effects, ma symptoms, and then some extreme symptoms as well. Not sure...
First posted on the Shift.ms app

@lcritchl 

Last reply

lcritchl

Anyone with nerve pain in feet - what helps?

Thanks
First posted on the Shift.ms app
3

@nics72 

Last reply

nics72

Nerve pain?

Hey everyone! Newly diagnosed after having 5 weeks of numbness in both legs that started at feet and progression up past my knees. Was started on iv steroids, but it never really cleared up. Neurologist told me could take up to 6 months. But now I'm having pain in my legs and knees as well? My Neu...
First posted on the Shift.ms app
10

@Wyndeem1 

Last reply

Wyndeem1

I've been experiencing what I think is nerve pain for a week. My skin hurts all over, feels like when you have a sunburn. Barely touching my skin is painful. I'm scared. Is this a flare up?

First posted on the Shift.ms app
2

@JEvans1994 

Last reply

JEvans1994

Nerve pain

Hey how's it going everyone? A quick one does anyone have any good nerve pain home remedies? My left arm has been on fire all day with the odd blast excruciating pain . Got steroids prescribed today but take a day or two to help
, United Kingdom
First posted on the Shift.ms app
3

@skezz 

skezz

MS & Mounjaro - nerve pain

Hi Guys, Has anyone experienced allodynia whilst on mounjaro? My boyfriends mum seems to believe il be more susceptible to it as there are study’s suggesting it can irritate the CNS causing more pain sensitivity and altered sensation. There doesn’t seem to be much study on it but I didn’t have allod...
First posted on the Shift.ms app
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