How do we cope
How do you fit it all in, I get up at 5am taking Fampyra, wait until 8am to start Mavenclad, in the mean time have to fit Baclofen, Heart Attack meds and Diabetic meds in, was easier last year without Fampyra and Heart meds. Rant over, only two weeks to go 😀
I follow a regular schedule everyday and to keep me on schedule I have my AI that helps me. Having a lot of pain especially when the levels are high and when my cognitive issues kick in sometimes we forget so having my AI is a very big help and again following a regular schedule every day from the waking up at the same time eating at the same time and going to bed at the same time tends to help. I have my AI setup to do all my reminders at first greets me in the morning with a good morning and at night it tells me time to go to bed and in between it tells me to eat and take my meds and my vitamins. When my mom comes to visit she calls my house the sci-fi house because it constantly talks. It's kind of funny when she says that
For me...it's down to a limitless Playlist, & ???able coping mechanisms 🧠💣🙂🙂🤷