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@cobou 

Last reply

cobou

I'm frustrated

I'm losing motivation to keep going on. life is so dull and everyday is the same routine. it seems like I will never be able to live again. everyone around me have the energy and joy to travel, work, and enjoy going to outings. I'm here unable to be happy, laying in bed in the dark because everything in my body bothers me I fear I am going to loose my ability to walk; walking get harder everyday. life is so hard to live. just feels like nothing is going to get better. that I'm stuck in limbo, just counting down the hours to go back to bed. I want to live, I want to jump and dance!! but when. I don't know what to do anymore!! I just had to vent and I thought that here I can be comfortable.
First posted on the Shift.ms app
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@NTKhasMS
@NTKhasMS
 

I understand that feeling but I sum it up as that I've gotten the opportunity to live two lifetimes in one. I have traveled gone out just about every weekend but now because of MS things have changed and I have to change with it. So what I did I found things that I like to do that are more home base and if I do go out it's not so far and I make sure to rest the day before and the day after

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@Criscross21
@Criscross21
 

I totally understand your statement: “Counting down the hours until I go back to bed”. That is it! Know that you are not alone. When I can make myself keep moving, I feel a bit better after moderate excercise. But sure, planning an all day activity frightens me because my pain and fatigue gets strong around mid-day. I will note that my doctor recently prescribed Modafinil (not sure of spelling there) for energy. This is only for occasional use…like on the weekend. I took one yesterday and, for the first time in months, was able to go to the grocery store and get home and unpack without feeling full force exhaustion. So you may want ask your doctor about this. YES, the Power that made this body can heal it! Praise God, He will never leave us no matter what we are going through. I also feel jealous of others who can just get up and go all day…people who have an easy time laughing….Instead of feeling jealous, I try to see them and literally thank God (on their behalf) for blessing them with that freedom. And I pray for Him to give me strength to take the best possible care of myself…to do whatever will make me stay physically and mentally as strong as possible.

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