Shift.ms

4 Jun 2025 11:42Last reply 4 Jun 2025 14:04

What should I expect?

Hi! I just got diagnosed exactly 20 days ago, and then a few days after was my 25th birthday where I had to break the news to my family. My neurologist was great for ordering tests and getting me diagnosed buuuttt not so much anymore. I just had my first infusion yesterday, another patient at the cl...

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@elfypedia

3 Jun 2025 15:36Last reply 3 Jun 2025 16:26

Wiped ouuuut

Any tips for springing back from a total energy wipe out? 😂 I went to a hen weekend in another city - I had to travel 4 hours to get there and back - was Friday to Monday and I had a full day on Sunday in bed when they all went out on an activity - but now I'm home I feel like I have been hit. By. ...

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Unpublished

@Michellejohn35

3 Jun 2025 10:25Last reply 3 Jun 2025 19:26

Am had working person 🤔❤️

Hello. I’m interested to know how those runners amongst you manage your fatigue? I’ve been a runner for years and used to do reasonable distances quite happily. But lately anything over about 5/6km leaves me feeling broken for days. Absolutely wiped out. I never used to suffer with fatigue but f...

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@Gem1

3 Jun 2025 09:50Last reply 3 Jun 2025 21:00

Fatigue and running

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@m2me

3 Jun 2025 04:39 Edited

Exosome Therapy: Thoughts or Feedback?

I’m curious if anyone has tried or heard anything about exosome therapy for MS? I know it’s still considered experimental, but I’ve been exploring different options and wanted to see if anyone has any personal experience or insight. If you’ve done it, were there any noticeable changes (good or bad)...

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@ChiMum

2 Jun 2025 21:39 EditedLast reply 3 Jun 2025 10:55

Two and a half years through

Hi, I've not been here for ages because it wasn't good for my mental health. I just really needed a safe space to vent. I'm on the maximum dose of Sertraline at the moment but I don't feel that it's helping enough. I was diagnosed with RRMS in December 2022 and my life has completey changed sin...

Sheffield, UK

@Benk

2 Jun 2025 17:47Last reply 2 Jun 2025 18:34

New to this

Hi I thought I would introduce myself Firstly, thank you for letting me in to your community I have not yet been diagnosed but I have been referred to a MS specialist team by my neurologist due to having legions in both my spinal cord and brain, as well as fatigue, PEM,memory issues, spasticity in...

First posted on the Shift.ms app

@Henrietta

2 Jun 2025 17:30Last reply 3 Jun 2025 10:09

Complacency comes before a fall…

Oh. Diagnosed 2020 aged 56. On Aubagio ever since. MRIs stable, no new symptoms, no new lesions. Had my annual MRI on Friday prior to my annual check up on July 1st. And then bam, call from MS neuro out of the blue requesting I go see him tomorrow as MRI is ‘not good news but not bad news’ and I may...

First posted on the Shift.ms app

@Marcpowell83

2 Jun 2025 17:28 EditedLast reply 2 Jun 2025 19:42

Anyone tried BPC-157

Hi all, Has anyone tried the tablets BC157 to support the reduction in MS side affects? I have completed some small online investigations nd it apparently reduces nerve damage and aids support functions. Any feedback would be greatly appreciated. TIA 😊

First posted on the Shift.ms app

@KarenMrMoose

2 Jun 2025 08:43Last reply 4 Jun 2025 18:25

Walking

Hi all.. do's anyone else feel let down by their doctors.. My consultant is more bothered about how far I can walk than anything else, I have vision problems but to them it's not a problem to me it's a nightmare and all they keep throwing at me is physio to help my walking... I'm not on DMT as my bo...

First posted on the Shift.ms app

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